support group meetings for finasteride victims

General Discussion Media & Awareness
#1

Hello Forum Users,

I have been suffering from PFS symptoms (erectile dysfunction, muscle atrophy and difficulties in focusing - in a nutshell) for over 5 years now. I’ve been thinking that people who suffer from widely recognised health conditions - cancer, depression, genetic diseases, etc have their own support groups and meetings where they can share their stories and get some social support. But I haven’t heard PFS sufferers frequent such meetings. I’ve been suffering in silence for all that time because obviously it’s not an easy thing for a man to admit problems with erection… Then I thought that perhaps people with PFS would benefit from meetings - in real- to share their stories. I consider it would be a spirit-lifting to know people with same problems and to learn how they fight them. If someone has already come up with this idea, I’d be grateful for an information, if not - I suggest we organise a meeting. What do you think?
Regards
G.W.

#2

Do you imagine encounters?
Or a call line?

#3

Hi, face to face encounters would be best, but an online meeting is much more feasible, I guess. Especially for those, who live in remote places. Any ideas?

#4

Good idea.

If anyone wants to chat Im on superally82 (skype) Add a note to tell me where youre from(ie the forum)

Speak soon!

#5

Where are you in Europe?
Could be sharing Skype id (pseudo accounr dedicated to pfs i guesst) in a thread.

#6

Sorry folks, I haven’t been here for a while. If your’e still interested in the topic, skype me: Grey Worm. Or post a message, please.

#7

Again, we are just discussing what we might plan to do, but there are no concrete steps been detected.
We are talking what could be done, but nothin happens.
That’s why I think that this platform has more a psychological effect on people - they think something is going on. But seriously, beside of some discussions re treatment there isn’t any effort to bring this problem out to the public. We cannot expect others to help us bringing the important information to the public.
It is not sufficient to mail to podcasters or journals cause this information are not touching people directly, they are received like any other information. This syndrome has to get into the life of people in the streets, at universities ands on. Important is that people are talking about publicly.
Maybe I am wrong, this platform again was just build (“solvepfs”) to calm down people by unconsciously saying them all will be fine a day. No one is really fighting for the right thing cause he is “brainwashed” by this. And of course, we don’t have the energy as we had before.
We should print cards with information on it about pfs and give it to all people of all ages. But, maybe that’s a bad idea… this syndrome is not meant to go really public. Just think about that: I showed my parents the foundation’s website. My mom thought they are just psychopaths. Even after showing her the studies. So, you see tat information alone is not sufficient- people need to be touched emotionally like in the commercial breaks. If people from all ages would see what can happen to them, they would think twice about taking it. Attention, M. could see that as an assault on its product… this is they don’t want. That’s why I don’t write any other information about how to do go on. Best

#8

Noprop, I still think this portal can at least do one thing - give people hope, when they really need it. And besides, I think that at least some pfs suferers want to share their problems with people who are facing the same problem. It would reassure them that they’re not alone.

#9

You are absolutely right.
But will this way give us a chance to find a cure? Who knows?