Sufferer from Canada with a ton of symptoms

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)? Canada

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?) Google

What is your current age, height, weight? 62, 6’00", 198

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)? Propecia

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? 1mg/ day

What condition was being treated with the drug? MPB

For how long did you take the drug (weeks/months/years)? 13+ years

How old were you, and WHEN (date) did you start the drug? 48

How old were you when you quit, and WHEN (date) did you quit? 62 , July 2019

How did you quit (cold turkey or taper off)? Taper (sort of)

How long into your usage did you notice the onset of side effects? Only once I stopped

What side effects did you experience that have yet to resolve since discontinuation? They all only started after quitting fin

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
Loss of Libido / Sex Drive
Erectile Dysfunction
Complete Impotence
Loss of Morning Erections
Loss of Spontaneous Erections
Loss of Nocturnal Erections
Watery Ejaculate
Reduced Ejaculate
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility

Mental
Emotional Blunting / Emotionally Flat
Difficulty Focusing / Concentrating
Confusion
Memory Loss / Forgetfulness
Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
[x ] Suicidal Thoughts

Physical
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Pain
Testicular Shrinkage / Loss of Fullness
Genital numbness / sensitivity decrease
Weight Gain
Gynecomastia (male breasts)
Muscle Wastage
Muscle Weakness
Joint Pain
Dry / Dark Circles under eyes

Misc
Prostate pain
Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Hearing loss
Increased hair loss
Frequent urination
Lowered body temperature

Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? Occasional clonazepam for bad anxiety attack.

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?

Anything not listed in the above questions you’d like to share about your experience?

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

I was on Propecia for way too long (10+ years) I never had any side effects while on the drug but back in July I realized I had been taking it sporadically, maybe missing a day or two here and there; and then at one point, for absolutely no reason at all, I decided to stop completely.

Turns out that may have been a mistake.

A few weeks after stopping, I noticed muscle twitches (fasciculations) in both my legs below the knees and my toes would move a tiny bit on their own.I also had pins and needles in both arms and hands.
I was able to see a neurologist and have some fancy tests done about two weeks later. Mercifully, MS and ALS were ruled out. Shortly thereafter, I started to get more symptoms: chills, joint pain, constipation and levels of anxiety that were off the chart. The anxiety being by far the worst symptom.

Here I am now about four months after my last pill and I can add itchy face and scalp to my symptoms as well as a sore prostate. There are days when I hardly pee all day. My libido has plunged and I have ED issues as well. I have lost about 20-25 lbs. in the four months.I have difficulty concentrating/ focusing.

So there you have it. Another life destroyed by Finasteride.

I look forward to getting help and giving back whenever I can.

I have filled out the survey.

Rob

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Sorry to here about your experience Rob, on the flip side it’s only been 4 months since your crash so there is still room for improvements with time.

The anxiety was terrible for me as well in the beginning but luckily with time I’ve become calm again like pre PFS and rarely get anxiety attacks anymore, so that may resolve for you also.

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Hi Rob!

I’m sorry you’ve been suffering from side effects. Your story matches the one we’re all going through. Thank you for filling out the survey, as well. We use that data to show before/after PFS as a piece of evidence we have this condition. If you like, please explore our community projects to learn more about our 23&me project, YouTube project, and more. If you ever need to vent/rant about anything including anxiety, reach out to someone here. We’re all in the same boat and there are nice guys out here that have helped me out when I’m down and out.

3 Likes

1 Like