Study Participation Experiences. A call to arms.

[mcibofh]

I have contacted the study and am waiting for my appointment time. This only works if we stop talking and actually go. Are you going to go westside? Last I checked they still needed 10 guys.

@westside

PVDL is absolutely right on this. People sarcastically calling him a messiah because he’s advocating on research of PFS by world leading experts is ridiculous. The only people who need calling out are the ones who play pretend Dr, falsely claiming they are the ones with a cure.

The reality is that we will not get to the bottom of these issues hypothesizing amongst ourselves in front of our computer screens trying to be armchair Drs. It’s why the studies done by world leading experts at Baylor and Harvard are so important and our only way to getting to the heart of the issue. Doing our most to get those studies completed is our best hope of finding a cure. I just wish more people on this board would start putting their energy behind that and stop chasing delusional pipe dreams in other avenues.

For years myself and thousands on here have been tormented by pfs without a single advocate or dr in our corner. Now a foundation has been created by parents of sons who suffered from pfs to finally advocate and get studies done on our behalf, and how did we respond as a group. The reaction of many people on this board has been to put it down, show zero support and be negative towards it. What the hell are you people thinking!! If there are those of you out there that don’t agree with op, fine, just move on to the next thread. Why come onto this thread and even bother commenting. The sarcastic posts with name calling and bickering is pointless.

To those saying that there’s no harm in trying your own home brew ideas found on these boards made up by wannabe dr’s, your wrong. Do you know how many countless men on here, myself included have worse symptoms after trying suggestions found on these pages. Every suggestion for a drug or herb I’ve found on these boards over the last 6 years that I’ve been here have made me worse.

[mcibofh]

Its not a clinical trial. They will code the procedures for your insurance. If you have expenses over and above that just coordinate with Phillip media@pfsfoundation.org.

@longtimeuser

Thanks, I contacted the email link you provided above. Hopefully this will not be a difficult process. Did you say our personal insurance plan would have to cover this? I have a pretty restrictive health plan and doubt this will be covered by my insurance, especially if it is a clinical trial.

[Finatruth]

And I’m calling out PVDL to participate.

[Pff]

How many more people do they need? If we know that we should spam the whole forum with it till its filled.

[pvdl]

@Pff

How many more people do they need? If we know that we should spam the whole forum with it till its filled.

We need to do both. Spamming the forum and participating ourself, even if we are foreigners.

This forum should be laser focused on filling up these studies with lightning speed and with the best PFS cases (no hypochondriacs).

[westside]

@mcibofh

I have contacted the study and am waiting for my appointment time. This only works if we stop talking and actually go. Are you going to go westside? Last I checked they still needed 10 guys.

I would do it in a heart beat however 6 years ago when I crashed from pfs, like many of you here, I started having feelings of depression along with suicidal thoughts . I went to my Dr and the first thing they do is prescribe an anti depressant which makes me ineligible for the study. Finding people who suffer from PFS which causes depression that haven’t taken an anti depressant I imagine is difficult. It’s like trying to find a needle in a hay stack. Which is why if there are any of you reading this right now who are eligible to participate in the study I implore you to please do. Please don’t think you can just leave it up to someone else. We desperately need you.

[mcibofh]

I am pretty sure that is incorrect. They eliminate you if you took SSRI’s before PFS. Not after. You may want to double check.

@westside

@mcibofh

I have contacted the study and am waiting for my appointment time. This only works if we stop talking and actually go. Are you going to go westside? Last I checked they still needed 10 guys.

I would do it in a heart beat however 6 years ago when I crashed from pfs, like many of you here, I started having feelings of depression along with suicidal thoughts . I went to my Dr and the first thing they do is prescribe an anti depressant which makes me ineligible for the study. Finding people who suffer from PFS which causes depression that haven’t taken an anti depressant I imagine is difficult. It’s like trying to find a needle in a hay stack. Which is why if there are any of you reading this right now who are eligible to participate in the study I implore you to please do. Please don’t think you can just leave it up to someone else. We desperately need you.

[mcibofh]

I sent a follow up e-mail to Sharon about getting an appointment. Waiting for a response.

[pvdl]

@mcibofh

I sent a follow up e-mail to Sharon about getting an appointment. Waiting for a response.

Great work. Lets get this done, after we know the cause homebrew even on this site will be much more effective!

[Finatruth]

PVDL- when are you participating?

[mamoo]

@Finatruth

PVDL- when are you participating?

please don’t disrupt this important thread by pursuing a personal argument. … We are trying to do something constructive here…

[depressedguy]

@Finatruth

PVDL- when are you participating?

When are you donating 100k $$$?

[mamoo]

@depressedguy

@Finatruth

PVDL- when are you participating?

When are you donating 100k $$$?

Let’s try to keep the thread on topic depressedguy… i.e. encouraging participation in the studies and updates regarding progress

[bizzbee333]

Updates regarding progress…yeah try checking back in a couple of years when they have actual results. In the meantime you can listen to the whiny little mouse squeak about how hopeless and permanent this condition is and how some of these other recoveries sound like bunk because one of them was hypochondriac. THIS…IS…THE…FUTURE…OF…Propeciahelp.com!!! YEAH !!! THE STUDIES!!! THE HOPELESSNESS!!! THE PERMANENT SIDE EFFECTS!!! ALL HAIL THE SQUEAKY WHINY LITTLE BITCH MOUSE: PVDL!!!

@mamoo

@depressedguy

@Finatruth

PVDL- when are you participating?

When are you donating 100k $$$?

Let’s try to keep the thread on topic depressedguy… i.e. encouraging participation in the studies and updates regarding progress

[Finatruth]

Yup, I’m glad I didn’t part with that 100,000, 2 years ago I thougt this was a permanent condition. I’m glad I followed Proscarred, chi, john Coleman, Mitch, cd nuts and others. I am about 85% recovered, right on CHi’s timeline.

But participation is important to can Depressedguy and PVDL pleaee particulate

[depressedguy]

Hahahahaha you are insane. You didnt follow chis, cdnuts or mitchs or other motherfuckers recovery protocol. You recovered with time because youre lucky.

WHAT A MORON YOU ARE. COMPELETE IDIOTIC ATTIDUTE. Please stop participation, please cancel all reasearches BECAUSE FINAFUCK GETS BETTER. THATS ALL WE NEED.

[mcibofh]

[Size=4]Post PFS SSRI use doesn’t disqualify you from Baylor. I double checked today. If you had taken it pre-PFS is would have. So your good to go. [/size]

[mcibofh]

bizzbee333 & Finatruth, Time, exercise, and diet help. We all get that, they help normal people also. Its really not productive for you to be here slamming homebrew and studies. I mean really… Propecia caused some of us severe neurological damage. For those of us with neurological damage this could very well be a life long issue. So have some compassion for god sake!

[Finatruth]

Neurological damage like depersonalization, memory loss, lack of emotions, dizzyness? I had all that “brain damage” and it is all gone now.

Yes, time diet and exercise do help, along with positivity

I do think studies are important, that’s why I was asking Depressedguy and PVDL to participate

And btw, don’t hate me because I am recovering. Don’t be jealous. There was a time when I reached out to all of you and encouraged everyone that recovery is possible. Even Tigershull who fought wicked battles with me is seeing some positive changes finally

[depressedguy]

@Finatruth

Neurological damage like depersonalization, memory loss, lack of emotions, dizzyness? I had all that “brain damage” and it is all gone now.

Yes, time diet and exercise do help, along with positivity

I do think studies are important, that’s why I was asking Depressedguy and PVDL to participate

And btw, don’t hate me because I am recovering. Don’t be jealous. There was a time when I reached out to all of you and encouraged everyone that recovery is possible. Even Tigershull who fought wicked battles with me is seeing some positive changes finally

I will hate you until i see improvoments.