Starting a Propecia Side Effects Foundation

General Discussion Media & Awareness
#1

Guys… Mew, John 123, I have been learning a lot about medicine lately, as I have jumped around from health plan to health plan, while also in the process of seeing many different doctors and surgeons this year, for some other persisting issues I’ve had. Surgeons in particular.

Medicine is a business! And these guys don’t always jump at the opportunity to just gain new patients, even with their Blue Cross Blue Shields coverage programs in hand… etc. With the way things are going these days, more and more people have insurance now, well at least in Massachusetts…, and many private practitioners have enough or often sometimes too many patients.

Another insured patient with healthcare provider does not always translate to increased enthusiasm by private practicing doctor!
But cash offers! Zeros!!! do ALWAYS bring enthusiasm!!! Even in medicine. Yes. Do you understand what I am trying to say? I’m sure you do!
Now lets now think like scientists for a minute… Mew?? any ideas for what sorts of clinical trials could go on, how, with how many people, the basis or designs of any of these past clinical trials like the few we have read about?? Do you know any details as far as how any of these were conducted? I’m sure one would need to have a highly accessible diagnostics lab on board, etc…

I wonder how much a trial like this would cost?

How much money would we have to raise in order to propose to a legitimate scientist/MD to be on board for such a project?

Even before any such money was raised, people often approach such prospective business partners (doctors) and talk numbers, dollars and cents, as if they already had it! The money! Do you catch my drift again here? Please try to follow. And reread if you are having trouble…

Now don’t even try to shoot this down right away with your objectivity, and cynicism please. This is how organizations… AND foundations… are started!! Conversations like these!!
They aren’t started by people with lots of money.
They are started by people with a justifiable cause. One that needs funding, and one that is worthy enough to raise money for!

There are many foundations out there. For all kinds of uncommon diseases.

All it takes is one person, and a discussion like this!
Thank you for reading

#2

I wasn’t going to reply to this but thought, what the hell.

While I like your enthusiasm on this, it is also a very serious endeavour with a lot of responsibility. That said, if you’d like to start a foundation Boston, be my guest! I’m not prepared to take something like that on at this stage.

Yes everything is driven by money, so that begs the question – what action do you plan to take, or propose people take to do something about it?

I have no idea.

Boston, you’ve posed and presented a lot of questions… but if you want to make something like that a reality, what concrete strategy can you present, backed by factual info about how to setup a “foundation”, that would get doctors’ and members’ interest?

None of this “pie in the sky” stuff, I’m talking where the rubber meets the road – a business plan, or outline of HOW EXACTLY you would accomplish what you are saying you want to accomplish.

I’m not being negative, I’m being objective. Like I said, give it a go if you feel so strongly about it, there’s nothing stopping you. If people want to contribute, they will.

On the other hand, I doubt people will want to deal with insulting behaviour like this.

Sorry to turn into a dick ehre, but your sense of entitlement around here is starting to really get on people’s nerves (I’ve already had a few complaints)… so for you to act so disrespectful towards others – least of all me, the guy paying out of pocket for your priviledge to post here – comes off extremely rude, arrogant and selfish. The least you can do is present your thoughts in a professional manner, so consider this a warning… and stop calling me “dude”, thanks.

Furthermore, while I appreciate your enthusiasm (and yes, I understand what you are trying to say), the way you go about it does not come across as “mentally stable”. Surely you can write without !!! or ???, choppy short sentences, hopping from topic to topic within a post, or writing page-long manifestos that meander all over the place… while keeping your thoughts concise and to the point?

I’m not trying to control how you write, it would just be nice if you could write in a normal fashion so others can easily follow your thoughts… because I’m sure those reading what you have to say would appreciate it, if they are to get anything from your posts. I’m sorry to say but most of the time, I get the feeling nobody can tell WHAT YOUR POINT IS because it gets lost in so many tangents and endless sentences… which is a real shame.

Anyway I’m not here to argue and take this thread off topic, just keep things in check and to a reasonable length so people don’t get lost!

#3

Ok, I hear what you’re saying about length and better writing. I will try. I’m just not a very good typist all the time.

But back to the point.
So like I said, lets build! Not be so objective about everything. I didn’t brainstorm, write, present this idea, and ask you all the questions just for you to ask them all back? Try to maybe give me a little more respect too please. I may not be an eloquent writer all the time, but please recognize that I have a very intelligent mind.
Add, don’t breakdown! Everything!

#4

Define “build”. What are you suggesting people do?

I ask them back since you presented the idea, since you’re the one who wants to get this going… if you want to lead the charge, people are going to ask you how you’re going to do it.

If you’re not comfortable with that, and not willing to take action, then this will simply remain a fantasy idea.

Respect is earned, not just freely given… least of all to someone who directly insults me on occasion. And I’m not saying I’m the be-all, end-all either, or know everything… I’m just another guy going through the same shit we all are.

So yes I recognize you have a lot of ideas which stem from an active, thinking mind, which is great! BUT – if they are to be more than ideas, they require action… and you need to outline how that process will happen so people can follow your steps to produce results.

If you just want people to nod and agree with you without ever questioning anything, so that you don’t have to defend your viewpoints… well, not sure how far you’ll get in terms of convincing people to do what you want.

If you’re willing to present an idea that you want others to participate in, you need to outline why they should do so, and how they should do it… and presenting counterpoints to defend your arguments, if your viewpoints are questioned.

#5

Ok, First of all, just like you, I am not in a place where I can take on such the endeavor right now. And probably not anytime very soon, as far as carrying this.
I would however, jump and meet, correspond, and help, as much as someone wants me too!
I don’t know if that makes sense, but let me try to explain.

Firstly, we would need to call a meeting, preferably in the same city in which the doctor/researcher of our choice resides. We would try to meet there for a long weekend, so we have time to get things accomplished. We would try to do everything from meeting and greeting, to talking a lot, to writing the business plan and strategizing, to even visiting the doctor.
We would all want to get on the same page, and really hash out a good game plan. Whoever the overwhelming majority votes to go visit the doctor would go, and of course we would have a script!

As far as raising the money, we would have to talk about that.
Firstly, we would need to present all the literature in a nice attractive packet of information. We would need to work on this. It cant be too overbearing right off the bat. You have to appeal to peoples emotions. It cant be laid on so thickly that it almost becomes taboo. Do you know what I mean. We talk about our FERTILITY AND IMPOTENCE maybe as one, and SERIOUS PROSTATE PROBLEMS as another. And then a focus on “young men’s extreme sexual dysfunctions and changes.”
Then to go on to the comparisons with chemical catrations, pain and fertilty again.

The information packet has to appeal to people’s emotions regarding our health and wellbeing, and NOT be leaning towards our own sexual pleasure satisfaction.
But gaining even the first investor will be a chore. I’m sure. Even the first few will be.
BUT it can be done. And especially if we already have a researcher who is willing, because that will give us all something to work for, and have some enthusiam, and a sense of meaning. Because I dont know about you but I work better under pressure, and when I have a deadline. I perform when I need to.
SO we act as if we already have A LOT of the money.

AND THEN, the power of many of the people on this forum…
I think we could raise money.

The thing is, is we need a natural leader within our group. I would love to do it and have a lot of great ideas. I have owned a tree compnay for many years now. But I will admit, I have many great ideas. My friends always call me the doctor. However I have come to terms in my older age that I am not a good enough leader amongst men! I’m sorry to admit it. I need a partner, and I am good. I am codependent like that!
But I will say anything, and can have my way with people when I need to, I can be a charmer. So I would like to try to visit the doctor, if I am one of the ones voted to do so. And try to convince him to do this for us! I will name drop if I have to (my sister is kinda famous), and talk a big game. I will promise the guy anything I have to in order to get him to agree to do this research.

NOW we just have to do some research and come up with SOME ideas, not all, but some ideas, because I’m sure the doctor will have many of his own, this is why we are hiring him, on how and what to test for and research! Maybe a basic outline of what to research.

Also, this may sound gruesome, but me and ithappens were talking about this once, we could also try to add an attempt to also get some prostates for research and comparison some how. Get the prostate of a man who has been on finasteride or dutasteride, e.g. from a morgue, hospital, or like, and compare with a prostate from a healthy man who has also died, for research purposes in this area. AGain this is stuff that only takes a few connections, and a few conversations to often pull off, believe it or not. Two days in a lab.

I hope this adds, and helps anything!
I’m aware that this could go nowhere. And because I AM NOT the eloquent writer, I will not try to write a post in order to try to recruit people to meet. I will however add to it, and most definitely be there, and try to convince everyone to join. I will add to the post and try to “drum up” support and participation from as many people on this site as I can, and I will try to lead parts of meetings, and get people enthusiastic and lead them in more action based tasks. I am good at that. I have a lot of energy!

#6

I personally think this would be a great idea. We will need to organise in ‘reality’ for when the lawsuits start and lobby for research and a coordinated approach to our problems from medical professionals, instead of being told it is impossible or in our heads. It’s not entirley disimilar to JN’s ‘PRINTED BOOKLET’ idea.

#7

Excellent idea