I’ve had my prostate feel swollen and sore as well as burning these last 14 years with PFS but for the last 5 days I got stabbing/shooting pain in my anal sphincter while it feels like my prostate is burning/swollen. The pain is the worst in the morning right when I first get up. I also think my testicles hurt too at one point. I went to a urologist and everything came back normal including ultrasound. They think its pelvic floor pain caused by stress and put me on alfuzosin. But this feels PFS related - anyone else experience this?
Are your doctors aware of pfs and that you have it? Do they acknowledge it in any way?
There’s some reassurance to be had that everything looks ok on the scans, but annoying that, once again we don’t have real understanding of what’s going on.
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