Show doctors - and others - this A+ “About PFS” overview

General Discussion
#1

Long story but I first found this overview in Dec 2014 when the “crash” unleashed a horrific tsunami of maladies, including the emotional, sexual, libido, gynecomastia, skin, tissue, sleep, and depression shown:

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When I saw this overview, I first realized I had PFS. Unfortunately, in the crash chaos, I lost and could not find this overview again for years.

As I’ve detailed in prior threads, I inexplicably naturally 1000% recovered from all PFS maladies except profound sleep dysfunction by June 2017.

I saw 50+ docs (inc Mayo Clinic) during that period. I foolishly tried to VERBALLY explain PFS to them. I should have shown them this chart! All but 2 docs blew off my strident VERBALIZING about PFS.

I now realize that docs only respect written credible sources, particularly published research:

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I seeing a world-class sleep doc this month and will come armed with this overview plus PFS sleep articles.

PS On a lighter note!

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Cherry tree!

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#2

You went to Mayo, which one? How did that go?
I was thinking about going in the near future myself, Im not far from Minnesota.
How many specialists did you see there? Did you spend more than one day?

Im pretty far removed from having taken Accutane and have seen many Drs myself.
It almost seems like you need to have a strategy or gameplan going into things.
Sometimes I would lean hard on Accutane as the cause, other times I wouldnt mention the drug at all (especially as more time has passed to try to make the link 20 years later, even though I know this is very possible).

I think the problem can be as soon as a person mentions “drug induced” side effects that a fellow physician prescribed nonetheless, this patient might be getting tuned out.
Are they going to find fault with the original prescribing Dr? The drug company?
How much do they really want to pursue this?
This would be a can of worms I would think in their position with little upside.

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#3

@guitarman01 Yes you are perfectly describing the issue with docs. They hate having to speak badly about another doc or another doc’s specialty or the industry that produces healthcare and pharmaceuticals. There is a kind of code or understanding that certain things are not questioned. The priest, the politician, the policeman, and the physician–the 4 P’s that used to be above regular humans, but all that is passing away now. WE the consumers, we the ones who pay docs and drug companies for their services and products, we have a right to question authority and do it with backup from other sources, data, studies, research, and other patients.

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#4

Those neurological symptoms mentioned don’t cover the half of it

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