Did you do anything to heal or was it just a matter of healing naturally?
I did nothing.
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@Rb26dett please don’t assume from my message I’m ok. I was trying to be positive for Papasmurf. Time and faith is all some of us have left me included. I’ve had PFS 20 years. I don’t know how I’m still here. My suffering is off the scale and never abates. I continue to deteriate and have every symptom in the book and more. Every day feels like it could be my last, I often want it to be as it feels like the only thing that can stop the hell… I’ve lost everything and I am destroyed. I prey to God every night for his help and intervention…Please note this is not a competition but I feel a had to get my point across.
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I think it should also be noted that my libido has increased, deep sleep, male pattern baldness itch, excessive hair loss but my entire connective tissue has disintegrated, muscle loss, chronic fatigue increased, brain fog, anxiety, collagen loss from face, dryness, feet also feel like they have lost more of the cushion and atrophied. I cannot explain this other than sodium butyrate increasing Testosterone through some unknown mechanism or and I speak with caution and pure speculation may have upregulated receptors in certain tissues again.
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Same here. I think tribulus act like butirrate, because my symptoms start to worse after it, on June 2019.
In november 2019, my endo gave me low dose TRT gel and my connettive tissues totally broke
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Did your hair loss and libido increase?
Yes. My hair loss is crazy, man! I hasn’t alopecia, but in 9 month, I lost 1 inch of hair.
My libido is better, but my erection and sensibility worsened
Same. I feel like the hair loss is partly due to receptors that are still working but when the majority of receptors are downregulated and overexpressed this can worsen an individual by causing further desensitization. When my Testosterone was below the national average 8nml I functioned better and still felt androgenic whatever is happening our bodies are able to quickly adapt and respond in a negative way towards increased androgens. It would seem that we are dealing with extreme downregulation in site specific tissues
Do some labs to see if theres anything wrong going on. sounds like death estrogen. Hair lose is also low estrogen hyper/hypo thyroid.
I don’t think our problem can be diagnosed by labs.
This seems like a receptor issue and not a hormonal issue.
There were a few people who only got desensitized on their scalp, so their only symptom is no hair loss. These guys are so lucky.
Update:
Physical
Alopecia
Complete sexual dysfunction
More atrophy of penile tissue
Atrophy of muscles all over
Severe pain in following areas:
Fingers
Neck
Back
Ankles
Toes
Knees
Jaw
Teeth
I’m unable to walk without the use of knee straps and a back brace.
Mental symptoms:
Anhedonia
Psychosis
Severe Depression
Papasmurf do you also experience severe stiffness with your symptoms? I experience severe stiffness and severe pain in joints when i smoke weed nowadays. This disappears the day after. If you experience this constantly man i can envision the pain you are going through. I have two things that may help you because they are helping me during smoking weed. First, check your breathing, you are probably breathing barely because of the stiffness. Go sit outside in fresh air and don’t concentrate on anything, just relax. A good breathing exercise that is given by a specialist from a hospital here is that you should sit or lay down and keep one hand on your belly and breath towards it. Because of the touch you can more easily breath through your belly. Second, you should try to keep stimulation low, by maintaining a low blood sugar. Fast for one day and see how you feel and try to eat only vegetables and fish or meat for a couple days with a sidedish (50g) of low glycemic grain like rye or some brown rice for example. This helped me both a lot maybe there is a slight chance this may help you.
Androgens are no longer working in my tissues, the pain is beyond anything I’ve experienced. There is a breakdown of bone, ligaments, tendons, muscle that’s replaced by sponge like texture. I will be in a wheelchair very soon
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I’ve been able to improve an incredible amount by taking aspirin - 4g per day for the last six months. Trying to figure out why it’s working so well. All my “MS-ish” symptoms like loss of feeling/sensitivity has been reversed about 80-90%. It also helps with appetite and getting more calories in, possibly because it also improves my digestion.
Worth a shot - it’s both cheap and has a good safety profile.
What are your symptoms? Do you feel you are a severe or moderate PFS case?
Let me know, please.
Strange, there was someone on here a couple years ago claiming PFS symptoms, after adding aspirin to zoloft and olanzapine, and an anti-androgenic effect of aspirin was discussed.
Some people took it as a joke/troll, but no one here expected their fate from the supposedly safe medications they took that led to long-term sides.
Of note, there has been a trend here over the years of people claiming both improvements, and worsening of symptoms, after further use of anti-androgenic substances.
How are you @Papasmurf ?
A lot of your symptoms overlap with CFS / Fibromyalgia. Not sure if you’ve seen the channel before, but Health Recovery on Youtube can be a great source for inspiration & hope. James who runs the channel spent 8 years of his life with severe CFS / Fibromyalgia to the point where he could hardly leave his bed. Consider checking it out. I hope this message helps in any way.
I am praying for you.
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Papasmurf is in a really bad way, unfortunately he’s continuing to deteriate and has every symptom in the book with no restbite!!! . A very strong lad with the heart of a lion. Some need a miracle and he’s one of them. I’m going to say a healing prayer for him tonight. It is just unbelievable that this is happening.
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Me too.
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