Season 2 of PFSN Podcast: Call for guests

Dear patients,

Following the success of season one of the PFS Network podcast, and our patient stories series, we are putting the call out for season two guests. If you are willing to tell your story publicly, we encourage you to get in touch.

Along with supporting scientific research, speaking publicly is the most important thing our supporters can do.

It is important to understand that recognition of this devastating disease will not occur automatically. To generate public interest - from researchers, media and regulators - we need patients to be courageous and bold.

It is easy to dismiss thousands of anonymous online reports. It is far more difficult to dismiss dozens of real humans telling their stories publicly.

If you are interested, please send me a private message or respond here.


Count me in (if you need foreigners). Of course, it’s a challenge for people with poor English.


Last call for guests - please contact me via PM if you would like to appear.

We have four guests organised so far but it would be great to have five for our next series.