Season 2 of PFSN Podcast: Call for guests

Dear patients,

Following the success of season one of the PFS Network podcast, and our patient stories series, we are putting the call out for season two guests. If you are willing to tell your story publicly, we encourage you to get in touch.

Along with supporting scientific research, speaking publicly is the most important thing our supporters can do.

It is important to understand that recognition of this devastating disease will not occur automatically. To generate public interest - from researchers, media and regulators - we need patients to be courageous and bold.

It is easy to dismiss thousands of anonymous online reports. It is far more difficult to dismiss dozens of real humans telling their stories publicly.

If you are interested, please send me a private message or respond here.

4 Likes

Count me in (if you need foreigners). Of course, it’s a challenge for people with poor English.

2 Likes

Last call for guests - please contact me via PM if you would like to appear.

We have four guests organised so far but it would be great to have five for our next series.

Thanks,
Mitch

2 Likes

Bumping this thread.

Three new guests have recorded episodes for our next series but we’d still love more volunteers. PM me if you’re able to speak publicly.

6 Likes

Please guys. Ya it’s embarrassing to go on BUT nothing will be as embarrassing as living the rest of your life as a social outcast with no girlfriend, job, money or joy for life.

Being “uncomfortable” for an hour at most to potentially save yourself decades of embarrassment and misery. Think about that long and hard. The decision to go on and speak is the logical one.

Also, Mitch does a tremendous job of interviewing. You most likely won’t even feel uncomfortable.

5 Likes

You can’t hide from the world with this condition. It’s not an option. You do not want to look back as you reach the end of your life and think “I had PFS for most of my life because I was worried about what people would think about my legitimate medical condition”

2 Likes