The story of our friend Ryan (@Papasmurf) has been picked up by an Irish newspaper.
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I don’t think the media is able to report the full range of symptoms due to the threat of legal action. So they have to report around what’s listed on the drug label. Criminal
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Good to see more coverage of the condition. I removed the copy and paste of the full article as that means less people here will click the link. The more people that click on media related to PFS, the better the chance that media organisations will think it’s something worthwhile to cover and produce more on it. I also turn off my ad blocker for articles on PFS.
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I hope he can get the stem cell treatment in Panama interested to see if it could help.