Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.
Where are you from (country)? France
How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?) Facebook - Victimes de Roaccutane (isotrétinoïne), Curacné, Procuta et génériques
What is your current age, height, weight? 46 yo - 1,65 m - 51 kg
What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)? Roaccutane
What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? 30 mg/day
What condition was being treated with the drug? Acné
For how long did you take the drug (weeks/months/years)? 6 months
How old were you, and WHEN (date) did you start the drug? 16 years old. October 1988
How old were you when you quit, and WHEN (date) did you quit? 17 years old - April 1989
How did you quit (cold turkey or taper off)? Abrupt withdrawal I think
How long into your usage did you notice the onset of side effects? A couple of years later
What side effects did you experience that have yet to resolve since discontinuation? tiredness, hair loss, joint and muscle pain, memory and stress management problems, especially digestive problems…
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.
Sexual
[ ] Loss of Libido / Sex Drive
[ ] Erectile Dysfunction
[ ] Complete Impotence
[ ] Loss of Morning Erections
[ ] Loss of Spontaneous Erections
[ ] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability or Difficulty to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility
Mental
[ ] Emotional Blunting / Emotionally Flat
[x] Difficulty Focusing / Concentrating
[ ] Confusion
[x] Memory Loss / Forgetfulness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts
Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[x] Joint Pain
[ ] Dry / Dark Circles under eyes
Misc
[ ] Prostate pain
[X] Persistent Fatigue / Exhaustion
[X] Stomach Pains / Digestion Problems
[X ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Tinnitus (ringing or high pitched sound in ears)
[X ] Hearing loss
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature
[ ] Other (please explain) Mastoses in the chest, allergies and food intolerances
What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? Especially diet. I can’t stand any medicine or other (plants…)
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)? I don’t know
Anything not listed in the above questions you’d like to share about your experience? Triglycerides increased a couple of years after treatment but back normal after a few months diet
Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug. I was pleased about the treatment (just dry skin during). Problems have come many years after and it doesn’t stop becoming worse. Sometimes, it’s difficult to continue to work and practice sport. I can’t travel anymore or go out with friends. In one word, I just have no life.