Rk1234 introduction

Where are you from (country)?

United States

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)

I’m from the PSSD Forum and I’m here to take part in the survey.

What is your current age, height, weight?

21 years old, 5 foot 11 inches, 195 pounds

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?

Fluoxetine

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?

20 mg/day for around 4 years.

What condition was being treated with the drug?

Social anxiety, depression

For how long did you take the drug (weeks/months/years)?

4 years in total.

How old were you, and WHEN (date) did you start the drug?

I began taking the 2013 and I was around 15 years old.

How old were you when you quit, and WHEN (date) did you quit?

I quit the drug when I was a freshman in college. I was 19 years old. Little over two years ago now.

How did you quit (cold turkey or taper off)?

I quit more cold turkey. I started to sporadically take doses because I wasn’t aware of the possible negatives this drug can cause.

How long into your usage did you notice the onset of side effects?

I noticed a general weaker libido although it wasn’t significantly reduced from my normal baseline. When I started taking the doses randomly trying to come off, libido significantly diminished. I also found that I was unable to get an erection when it all began.

What side effects did you experience that have yet to resolve since discontinuation?

Complete loss of libido, erectile dysfunction, PE, cant feel love and my emotions feel blunted.

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
[X] Loss of Libido / Sex Drive
[X ] Erectile Dysfunction
[ ] Complete Impotence
[X ] Loss of Morning Erections
[ ] Loss of Spontaneous Erections
[X ] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability or Difficulty to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[X ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[X ] Memory Loss / Forgetfulness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[X ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[X ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[X ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

inositol 18g, wellbutrin, SJW(made it worse), chinese herbs, microdose prozac (made it much worse), Flibanserin (slightly worse), Mucuna Dopa (no effect), Maca (no effect), Clomid ( no effect).

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?

My Testosterone went from around 650 ng/dl to 465 ng/dl.

Anything not listed in the above questions you’d like to share about your experience?

I have had PSSD for two years and it has been two years since I took my last full dose. In the 5 years prior to my last dose, I had horrible social anxiety and some depression which is why I was placed on the medication. Ever since being placed on Prozac my anxiety and depression withered away. I have absolutely never gotten depressed since all of this has happened to me. On top of that, my social anxiety was completely cured. It almost seems as if I never stopped taking that Prozac.

On another note, I wanted to mention that nothing I have taken has really made me improve or increased my windows. I have been stuck on a negative recovery slope unfortunately. I decided to take a microdose of prozac (probably a 10th of a 20mg pill) and It made my libido drop further and caused me erection issues. Before the microdose I would have very small windows where I would feel a bump in libido. Before the microdose If i refrained from masturbation my libido would get worse. After the microdose it no longer mattered if I masturbated or didn’t.

I have taken Flibanserin recently along with Clomid, Mucuna Dopa, and Maca. I feel as if these have actually brought my libido from a 2 to an absolute zero. I also find that now when I watch pornography I completely lose interest half way through and I have sometimes felt like my penis was going numb randomly.

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

I initially began taking 20mg of prozac during sophomore year of high school due to extreme anxiety and slight depression. I continued to it until the beginning of freshman year in college so it was about 2 years in total. Towards the end of my interaction with prozac I felt as though my anxiety and depression were almost completely gone and that I no longer need to take the prozac. I started sporadically taking doses when ever I remembered to take them and that what led to my current PSSD state. One day I noticed that I couldn’t get even the slightest erection no matter how hard I tried and I knew there was a problem. My libido was definitely blunted as well as the beginning but over the past few years has gotten much worse.

I was hyper sexual before prozac. Sex was on my mind constantly and there wasn’t a single problem with my erections. I also am able to remember what it feels like to have feelings for a girl and actually be able to feel anything.

have almost complete loss of libido as well as very weak erections and loss of feelings. The only time I can feel my libido is watching pornography. If im simply going about my day sex never crosses my mind unless I force it to.

I would say that the loss of libido and the loss of the ability for affection are the two symptoms that bother me the most. I say this because I never get any windows. I dont remember the last time i felt my libido spike unless i was actually watching stimulus such as pornography and even then the libido is nowhere near where it used to be. I also have a girlfriend and even though I care for her deeply I simply cant feel anything and it sucks.

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Thanks for your story. As with other cases, I’m sorry to hear of your issues. It sounds so much like mine (though I took finasteride). Tell me, what effect did Wellbutrin have when you tried it?

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Hi Rk1234,

Welcome to the forum. I am sorry to hear what you are going through. As you can see here in this forum, we all suffer to various degrees from the same side effects, although we have taken different drugs. We can all relate!

I am happy to hear, though, that you want to participate in our Survey. As you may know it is an important step to present our symptoms in an aggregated way based on scientifically validated scales. The Survey will help with that. We also expect this Survey to provide evidence that the symptomatic profile on the PSSD, PFS and PAS communities are identical. We have reason to believe that all three drug categories have a common mode of action and that all three conditions may in fact be one and the same.

The more people participate, the more powerful the data and the stronger our case! So, thank you for helping us! You should receive our invite within the next 24 hours. Please let us know if you encounter any problems!

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@orthogs I took Wellbutrin right about when this happened to me. I was on a relatively low dose and only took it for about 3 weeks. I didn’t experience any benefits during that time. I would be open to trying the drug again at a higher dosage.

@Northern_Star Thanks for the warm welcome this seems like a strong community. I’m still waiting for the survey but Ill complete it as soon as I receive the invite.

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Have you noticed any digestive issues at all or any other changes in your health outside of whats listed as side effects here?

@MasterofPuppets I haven’t had any digestive issues since this all started.

I have had testing done several times through an endocrinologist and regular physician. All the tests have come back normal.

The only thing I noticed was that my testosterone had dropped a decent amount although still in the normal range.

Have you tried the bar icon on the upper right of the page? Please let me know if this does not work and you don’t receive an invite via mail today.

Thank you!

Sorry you’re going through this, things got better for me i hope they can get a lot better for you too. Keep us informed on your situation maybe someone else who took prozac could help.

Glad to hear things have gotten better for you. I appreciate the positive encouragement and I’ll make sure to keep updated on my situation.

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I get an error message when I click the bar icon at the top right of the page.

Haven’t received the invitation yet but I’ll keep an eye out.

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@axolotl and @awor

Looks like this user did everything right, but cannot access the survey.

Hi @rk1234 and welcome.

@Northern_Star: Should be addressed now. @rk1234, if you could please try again in half an hour or so you should be able to access the survey via the bar graph on a desktop or laptop.

Best

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@axolotl @Northern_Star Thanks for your help. It worked and I have just completed the survey.

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Fantastic! I am glad that it worked now. Thank you so much for your contribution!

Please consider participating in the 23andme data project as well: Important Announcement: Two Community-Led Research Projects - Please Participate

There will be more projects in the future. We really want to get to the bottom of this, for our own’s sake! So stay around!

Thank you and good luck!

I have just requested my raw data from 23andme. Once I receive that I’ll name the file appropriately and submit it.

2 Likes