Requesting Information About Accutane Users From 23andme?

accutane
isotretinoin

#1

I got my 23andme kit a few days ago, and I was filling out the survey questions that they ask users to answer in order to help get more data. I got to a section that asked whether or not I had acne that warranted a prescription medication. I selected yes, and the very next question asked if I had taken Accutane. I found this interesting because this means that 23andme probably has acquired a lot of data about Accutane users that we aren’t aware of.

With this in mind, I was wondering if it would be possible at all to request information about Accutane users directly from 23andme. I’m not sure what the implications would be in doing this or if it would cost an extremely large amount of money to get the data, but I think it’s something worth noting. Although it didn’t ask whether or not I reacted poorly to it, maybe this could help down the line in some other way.


#2

Hi @BearOf17,

That’s a great idea, one that we’ve already talked about. There are a number of hurdles to overcome but rest assured it’s something that if it looks like it will be both helpful and possible, it will be persued.


#3

Really? That’s very interesting… I’m about to do mine I wonder if it’ll ask me the same


#4

They ask about finasteride as well