I contacted the Kinsey Institute about our situation. Maybe if more people contact them, they might be interested in research. Here is their reply:
If we are going to mass mail groups like this then we should organize it properly. Second Amendment, I assume you have already messaged them with details of the condition and our website, so what could other people emailing write, the same thing?
I don’t know. Each person’s communication style differs. After using the search function, I was shocked the Kinsey Institute was only mentioned once on this sight, considering this is the kind of thing they are interested in.
We are a researchers dream come true. We have a not-all-that-uncommon disease that is spreading quickly through use of dangerous pharmaceutical drugs. And this disease isn’t even in the literature. There has to be more researchers interested than just the Italians.
My suggestion: email the kinsey institute and tell them a brief version of your story and suggest they research pharma-induced sexual dysfunction since it is such a big problem.
They didn’t take but a few hours to reply to me. We know they are very compotent in their work and highly motivated in the topic.
Their response is so typical. But how do they explain a drug whose side effects not only presist after cessation but actually get worse? And if it is the case that this is such a common occurance as they suppose then why in god’s name is the FDA continuing to approve drugs that have such a destructive side effect when their benefits at the most might be considered mild.
This isn’t some case of “Oh crap, I took medication XYZ and I was impotent for a week.” No, no this is more like “Oh my god, my entire life has been ruined, my body and brain are messed up PERMENENTLY from a goddam hairloss medication!”
just my two cents,
Please don’t mention sexual sides or at least mention them at the bottom of the list. Tell them mental incapability to perform daily work. parkinson’s or Alzheimer’s like symptoms.Physical weakness, muscle loss, osteoporosis, tendinitis etc.
My experience is no body cares for sexual sides. if you mention they will think it is sexual sides only and there are many people with this condition to some extent any way. No body is coming to measure your dick or see how much shrinkage you have got after fin use to believe you. To them it is not a big deal,there is viagra for ED use it, stop crying and go back to your business.
Is there a place where i can swap my sexual problems with physical weakness, muscle loss, osteoporosis, tendinitis? It’s scandalous they don’t give a shit of sexual problems, they are probably worse than the other problems you mentioned. Use viagra?? i think i would be the happiest man on the earth if cialis (i used cialis) worked on me, but it was almost useless.
My dick is like 8 - 12 year’s old boy. My balls are 1/3 the size of their original size. I am down to 100% impotance some times, mostly important to 80% but despite these all I don’t care about this. I don’t care for my dick size or not getting up.
I
I need my muscles,health, mood back.
I want my joint pain go.
I want my bone pain, wrist pain, hipbone pain go.
I want my sleep back.
I want my appetite back.
I want my eye sight back.
I want my gyno go. I want my female looking body go. etc etc
but my biggest problem is my constant flue like symptoms with nausea. I have headache round the clock and can not do any mental or physical job unless keep popping vitamins.
If you have sexual sides only, you are very very lucky.
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