2 Likes
I just submitted my story.
Even though it is not ideal, I know that many patients want to stay anonymous.
So I just want to add that it is possible to hand in your story completely anonymous on this page.
The Rare Disease Day is a really great opportunity for our community to be seen and can be an important step on the way to getting the help we all deserve.
It depends on us if we use opportunities like this, so please get involved. There is really no excuse for not submitting your story.
2 Likes