Yeah sorry we shouldnt squash on any potential hope. Problem is that no doctor knows what causes PFS. So they can’t proclaim to be experts on it. They just acknowledge the problem and have the benefit of having seen lots of patients.
Looking at what tests he requested, I didn’t see anywhere that he checked for adrenal hormone metabolism or an insulin tolerance, but he did check the first three you mentioned. I’ll keep you all updated.
SOOOOO the good news is, Dr. Shippen believes I am in the 50% of patients he believes will be healed.
Although a lot of my levels seem normal, he realizes that a man’s testosterone levels can fit into “average levels”, but that they may not be normal for that particular man.
So for me, my test. was sitting around 540, and he believes it could really go anwhere from there to 900 something before it’s actually where I’d feel normal again.
So he’s prescribed me HCG, Testosterone PG drops to take (Holy SHIT did my body react IMMEDIATELY when taking these), a generalized version of Viagra, B12, and he also wants me to take some kind of natural supplement but I can’t remember the name of it.
Through these medicines, Shippen truly believes that my skin will heal (I had sagging and dark eyes), that my dick will return to normal, and that my depression and thoughts of suicide will subside. He said he believed it was a really good sign that I still was able to get an erection from messing around with females, and that the only thing that really concerned him were my levels of depression and suicidal thoughts, because even though my levels looked normal, those existing side effects were not.
So I’ll be injecting HCG and B12 into my body about 3 times a week, taking 3-4 test drops once a day (he gave me 5 at first and my eyes dialated and I got hyper as F*CK), taking the general Viagra EVERY day (should be interesting), and taking the supplements everyday.
I can’t honestly remember every single thing we talked about but there was SO much said. He really is great you guys. If you’re suffering hard, he’s worth the fucking money. I dropped at least a grand with the appointment and plane rides to see this guy. He listens. He explains things out in detail, and one of the best things is, HE BELIEVES YOU.
Tank you for your reply. It was interesting to read. I have had every blood test ever recommended and passed the whole lot as normal. Please post up in a few weeks how you are getting on with the treatment he prescribed you. As regards being one of ‘50% of patients’ I assume that means in the long term when enough research is done, root causes are identified, and treatments can be identified in our lifetime? I don’t believe there is a single person who has made a full recovery as of yet. Yes, it gets better I accept that. I am miles and mile better than I was the day I drove towards a local city with the intention of jumping off a huge bridge. I cannot believe today I am that same person. But I certainly haven’t healed.
I mean, yea… I think he believes that I could fully recover, or at least get a WHOLE lot better than I was.
Right now, all the medicine he’s got me on is great.
The HCG and B12 combination-injection seems to help with my sleep, mood, and I think it may even make me more aggressive (which may make sense considering it’s raising my testosterone).
The generic Viagra supplements he gave me for blood flow, libido, and growing my penis size back has worked so-so. Like, my dick hasn’t gone back to hanging like normal… it still kinda stays in this “soft-erect” state, which kinda sucks… but other than that, at least it gets bigger flacid on those pills and HOOOO-A-LEEEEEE HELL does that stuff work for getting an erection xD I got an erection this morning and was just looking at my dick in the mirror like DAMMMMM!!
Lastly, the Testosterone PG drops have been great too. They make me kinda hyper I think and I believe they may even give me better focus temporarily. Like I was playing a video game after taking some today, and I was wrecking EVERYONE and I was just thinking “Why is my aim and intuition so good on this game right now?” They also supposedly seem to be helping with some of the facial sagging I’ve had, although it’s probably barely any progress right now if any… that being said, I’m really only two days into this stuff so I’m ok with that.
My thing with libido though is that I feel I messed up my own libido long ago due to an addiction to porn.
In actuality, I think many of the guys here may be suffering from a drained libido brought about by porn addiction as well (certainly not everyone on this site, but many).
But anyways, yea, my libido comes and goes. Basically what i’ve noticed so far is that with the new meds, I get boners about every day, but I’ll only get really “in the mood” if I abstain from masturbating for about two days. If I do masturbate, my libido goes back to IDGAF mode and I won’t really be interested in hitting up any girls.
Seriously… there wouldn’t be lawsuits if that were the case, or research studies in progress on men who took Finasteride. Please use some common sense, especially considering men took a drug that have the various reported side effects listed on the label, which continue to persist despite discontinuation.
Please notice the fact that I didn’t state anywhere that all men suffering lowered libido after taking Finasteride were suffering because of porn addiction.
I simply believe that porn addiction causes many psychological issues that many men don’t notice until it becomes a problem. Taking into consideration the average amount of pornos many men watch these days, I’m just stating I believe that many men lower their libidos naturally and unconsciously by watching so much porn to begin with. Now throw Finasteride into the mix, and it probably becomes or at least seems that much worse.
For many on here (except perhaps those already with full-blown ED), I honestly believe participating in a no porn, no fap challenge could really help with their libidos and mindsets.
It certainly has helped me before and is something that many, many people have witnessed great results from. Just look into the site if you don’t believe me.
Its just not relevant at all. This forum is about propecia related illness/side effects. If you are that interested in porn addiction then go to a website that discusses that.
Yeah it’s the great irony and sadness about this. When we are sixk we naturally want to reach out to doctors to help. Doctors inadvertently pulled us into the propecia trap because of their lack of knowledge of hormone therapy. Now that we are sick we are learning the huge gaps in their knowledge of the basics as it pertains to drugs they pass out. As equally frightening as passing out dangerous drugs are the PFS docs offering treatment for an underlying condition that hasn’t been identified and they sure as hell have no idea what to do. A smart doc for most of us would immediately recommend T, although the literature supports not giving it and results are quite speculative for most therapies. So really a catch 22. We need docs to help us experiment with new protocols and to think outside of their comfort zones, but even then this problem is out of their leagues. The medical scam continues.
Doctors are basically useless, even the research ones are moving at a snails pace and their not approaching it from a treatment standpoint. Their just doing it in the academic sense, they don’t seem to want to discuss the science behind any of it, mostly and probably because they dismiss the opinions and experiences of non-doctors.
You can keep paying to go to these PFS specialists, I wasted a few hundred dollars on them myself, but you probably won’t get very far.
We’d all be better off paying for our own genetic analysis, a few thousand per individual is what I think the cost is… hell knows it would be a lot faster than the studies currently doing these genetic analysis.
Seriously, you’re depicting doctor’s help as USELESS?! Even doctors like Shippen who RECOGNIZE what we’re going through?
For your information, I feel a HELL of a lot better after seeing Shippen. I don’t think of killing myself everyday, I’m not depressed everyday, and my dick isn’t the size of a dill pickle everyday.
Seeing him DID help, ALOT. My old self has come back some, and for that I am thankful.
They’re not SCAMMING you, they’re trying to HELP you. FFS, you realize part of the reason people feel like there is no hope on this site is because of the half of you who just immediately shoot down any idea of getting better?
And as for the whole porn topic I brought up, I don’t believe it’s entirely irrelevant considering many of you complain of a lowered libido and I was trying to state a way in which you could increase you libido. Many people who hold off from masturbation experience great benefits, one of them reported often is increased libido.
If you are feeling better, we are all very excited. Merck has made most of us too sick to fight back so anyone who is battling just to stay alive in all this deserves credit.
As for the doctor issue, yes at least guys like Shippen have been acknowledging PFS. One less ignorant doctor peddling this poison. As for what we thought about doctors though, men like him are no different then stem cell clinics in India. They haven’t a clue what is wrong with you but more than happy to charge you a fuck load of money to give it their best shot.
If he and other docs were truly altrustic, they wouid share their protocols to help as many as possible but clearly there is a reason they don’t. I saw Jacobs a few months back and asked why if he has seen so many patients and even he acknowledges this as a molecular level disfunction, why he hasn’t tried to employ the help of labs to do a more thorough analysis of PFS. I wonder why others like Shippen who have the volume don’t actually try to study this. Isn’t that what medicine is all about? Our lives are on the line here. This isn’t a game to us and it certainly isn’t a business. The only authority any doctor can claim with PFS is his insight into the condition. And I am not impressed with how little a contribution any of these doctors has made in even attempting to study our condition.
HCG, B12, Testosterone PG drops, and a generic version of Viagra.
Get an erection at least once to twice a day without any use of porn, and overall have a much better outlook on life.
While continuing using this medicine, checking in with Dr. Shippen, checking up with my dermatologist, working out, and continuing the No Fap challenge, I believe I am on my way to seeing great recovery/results.
I seriously wish I could find the answer to figuring out how to fix the loose skin this drug has caused me though.
Like, the muscle wastage can be fixed… that just takes time… but the fact that the skin around my cheeks is loose makes everyday life so annoying.
Fillers are NOT a great option in my opinion. You’d have to spend sooooo much money to try and fill up what finasteride has taken away, and fillers wouldn’t even be a permanent result.
At this point, unless my face somehow tightens back up through exercise and balancing out my hormones, I’m looking into Ultherapy or a mid face lift sometime in the near future…