During a recent appointment with Prof. Bouloux, I asked him for his thoughts on the upcoming studies at Brigham and Women’s Hospital and Baylor College of Medicine. He gave me more than I asked for.
He said that after seeing 80+ patients over 7 years, he feels the idiosyncratic presentation of symptoms suggests a psychological origin. He mentioned past patients with prior “issues” in their lives.
He believes the condition to be perpetuated by the internet, and that updates to the Propecia warning label have exacerbated this.
For the sake of balance, he added that maybe Fin could have adverse effects on certain genotypes, or that it could disrupt the body in ways not yet known. Ultimately, he didn’t believe either of those possibilities.
Directly addressing the studies, he said that a hypothesis involving epigenetic interactions with the AR was “nonsense." And that there was no known evidence for such a hypothesis. He thinks the age matched controls should include current Fin users with no side effects.
With regards to Dr. Shalender Bhasin, Bouloux expressed great respect for him, but felt that he was “roped in” to conducting the study at BWH.
He is aware of Prof. Melcangi’s neurosteroid study, but did not comment on it.
Bouloux seems to be contrary to other “PFS doctors,” in that he was, perhaps, more open minded in the past. He even tried and failed to secure funding for his own study.
I was initially reluctant to post this as I believe it is important for everyone to have their own individual experiences with doctors, rather than read about what others report from their consultations. However, since Bouloux seems to tar his patients with the same brush, I felt it was worth sharing.