@silenceispink made a really good post on reddit. I’m going to share it below.
Prisoner’s Dilemma is defined as: “A paradox in decision analysis in which two individuals acting in their own self-interests do not produce the optimal outcome.”
Unfortunately, trying to fix our own individual cases is likely not going to work. Treatments and supplements are experimental at best, and harmful at worst. The current state of PFS is not unlike the prisoner’s dilemma. If we collaborate, we’ll get out of this faster. A great way to do this is with our Iatrogenic Fundraising group. The only criteria is that you donate what you can, monthly. Every last penny helps and there’s no such thing as “not enough.”
Additionally, if you can’t donate, consider speaking on the Moral Medicine channel. We are looking for patients to speak out about their experience. I know a lot of people are embarrassed in regard to speaking out, but we really need more people to do this. People can’t really empathize with a group of guys on a forum, but they will empathize with real, human beings telling their story.
The faster we do these things the faster we get out of this hell.