Actually, AWOR talked me out of doing it. When I talked to him about this he responded with what is below. Do I regret following his advice? This was 3.5 years ago soo…Absolutely
This is absolute nonsense and a stupid idea. What are you expecting from this? This is exactly the line of investigation that is going on with the WBH (Harvard) study and Baylor. The cost of these studies are in the significant six digit arena (each). The reason we have founded the PFS Foundation is not only to finance but also to make sure that studies are working together in the highest degree of synergies possible.
If you want to help yourself, please help us by donating this money to the Foundation instead of trying to set up your own set up studies. We need to focus resources, and I am shocked that some PFS patients still don’t seem to get that.
It is possible that the results from the current investigations will create new questions which will require further investigation and money. If you guys go blowing your cash on some side track, this may well be the funds that will be missing to keep on moving on the main road.
Think about this again please…
Awor