This is a novel, but I digress
I filled out the new member survey and pasted it to the bottom of this message, as well.
Hi, Guys,
OK, I found this site and have spent the past few days dreading my first post, but I thought Iād bite the bullet and write the story in its entirety. Iām scared, but I want to find out whatās wrong with me so I can get better.
In December of 2005 I started taking Propeciaā1 MG daily. I also had a hair transplant (after going on Propecia) and started taking Rogaine (I switched over to Rogaine foam and still take Rogaine foam). I definitely had some symptoms when on Propeciaādeceased sex drive; at times, my semen turned watery; it didnāt āshootā like it used to (when I orgasmedāactually, sometimes it would merely drip out). When I brought this up with the doctor who had prescribed the Propecia (a doctor at MHR), he told me 1% of Propecia users had these problems and I could stop taking Propecia for two weeks and elect to take it every-other-day, which I did. He claimed Propecia was safe and when I mentioned some guys on a message board claimed Propecia changed their penis shape (they said it had bent their penis to some degree), he and one of his surgery techs laughed and discredited their claims.
Though the awful problems began in October of 2008. I had sex and two or three days later, my testicles started to bother me. At first, it felt like somebody was striking the bottom of my testicles with a rubber band (odd, I know). It got worse. I made a list of the symptoms to bring to my doctor. They also included:
-Sore testicles
-Weird sensation on the top half of my penis (near the urethra)āand sometimes it would burn.
-Sore sides
-Urinated approximately 4-times per night
-Had that āoff feelingāādidnāt feel right.
-Slight nausea/tired/weak/infrequent cold sweats (perhaps from worrying due to notionā¦)
ā¦I thought I had contracted an STD from the woman I had slept with and asked the doctor for an STD test (whether a blood test or a urine test). The doctor claimed it would do no good, since I didnāt have any discharge. He thought I had Epididymitis so I went on antibiotics, which didnāt help. I returned to the doctor and received a second round of antibiotics. Here are my symptoms I recorded when I went on my second visit:
-Tickly feeling running up or down the back of my hip. I had the same sensation near the left buttocks/hip area. The feeling comes and goes.
-Sore testicles. Oddly, one tended to bother me more than the other, and the next day, the other testicle was more bothersome. This back and forth oddity occurred for around a week.
-Strange feeling at the end of my penis.
-Weaker urine streamāalmost numb feeling.
At this point, my sack was larger, so I did believe I had Epididymitis. It hurt like hell, actuallyāI would lay in bed and elevate my testicles with a warm washcloth. It seemed to relieve the pain a bit.
Fearing a testicular torsion or cancer, the doctor sent me to get an ultrasound. Everything came back healthy. Though almost a month later, I still had the symptoms, though not as bad:
-Sore testicles during and after I worked out (not awful, but noticeable)
-Sometimes after urinating, the area around the bottom of my penis (the urethral area) felt like it was being lightly pinched, and sometimes this area had a numb feeling.
-At times, my sides were ever so slightly sore.
-Some lower back pain.
-Often, after urinating, a drop of urine would later fall out (or form there minutes after urinating).
I saw a urologist and he claimed the problem needed to āburn itself out.ā He was convinced it was a result of an STD.
After a few months, everything was back to normal. HOWEVER, these symptoms return (not to the degree of the first time, but it still hurts) when I do one of the following two things:
-Have MISSIONARY style sex (seriouslyāI had a girl ride me one time and I didnāt have any symptoms later).
-Run on a treadmill a few times (even if I wear a jock strap and underwear).
I saw my doctor and he checked my prostate (using his finger). He claimed my prostate felt healthy, but that was the extent of the prostate investigation.
In the fall of 2009 I thought, screw Propeciaāthis isnāt worth it, and was suspicious of it.
I had sex a month or two ago and of course, my lower back became sore, as were my testicles.
Fed up, I went to the local hospitalās sports medicine clinic. I received back x-rays and everything appeared normal; though the physical therapist thinks I may have a back problem (perhaps a disk problem). I also saw a general surgeon who claims I might need hernia surgery. Iām meeting with the physical therapist and the sports medicine doctor again on Thursday. I asked the physical therapist if I could get an ultrasound or MRI on my chest to see if I had a hernia and he said he didnāt know (if one could determine a hernia using those machines). Though I could have one done on my lower-back, he said. The physical therapist urged I use the elliptical machineāI did (3-4 times a week) with no problem. So I believe that this problem occurs due to the pounding of the treadmill and missionary-style sex (weird, I know).
They also urged me to see a urologist again. Though Iām inclined to go to the Cleveland Clinic to see a urologist, since theyāre top-notch (not a far drive, either). Anyone ever go for The Cleveland Clinic for a urologist?
My question to you allāIām not so much looking for a diagnosis as Iām looking to see if anyone out there has experienced what Iāve experienced. I want to be well again. I donāt want to have sore testicles a few days after sex. This never happened to me until October of 2008, and it happens EVERY TIME I have missionary-style sex. It sucks.
Any feedback would be greatly appreciated. I hope to God Propecia didnāt do this to me. I just want some answers and the local medical community appears to be stumped. I still take Rogaine, use a laser comb, and take a few supplements (I started taking them after going off of PropeciaāSaw Palmetto, Nettle Root Extract). Iām 29 and am in great shape, but this situation has worried me. I had a few panic attacks due to the stress (Iād never had one before this ordeal). I feel like my motivation isnāt what it used to meāI feel tired, and feel like trying to be successful is futile (in life). Iām terrified I wonāt be able to father children someday, and Iām afraid my testicles will be sore after sex always. If anyone has any questions or comments, please share. Many thanks for reading this and caring enough to comment.
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How did you find this forum? Google search, plus the forum was mentioned in a Swedish news story I found on Youtube.
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What is your current age, height, weight? 29, 6ā4, 215
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Do you excercise regularly? If so, what type of excercise? Weight lifting 3X a week, cardio multiple times a week.
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What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)? Rather healthyāfruits, vegetables, meat. I eat ābad foodā rarely.
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Why did you take Finasteride (hair loss, BPH, other)? Hair loss.
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For how long did you take Finasteride (weeks/months/years)? Dec 2005 ā Sept 2009
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How old were you when you started Finasteride? 25
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How old were you when you quit? 29
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How did you quit (cold turkey or taper off)? Cold turkey.
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What type of Finasteride did you use ā Propecia, Proscar, Fincar or other generic? Propecia
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What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? 1 MG daily, and then I switched to 1 MG every other day.
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How long into your use of Finasteride did you notice the onset of side effects? Almost immediately, but I was assured I was OK.
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What side effects did you experience while on the drug that have yet to resolve since discontinuation? Sore testicles, sore lower back, etc (mentioned below)
Put an X beside all that apply:
Sexual
[ X] Loss of Libido / Sex Drive
[X ] Erectile Dysfunction
[ ] Complete Impotence
[ ] Loss of Morning Erections
[ ] Loss of Spontaneous Erections
[ ] Loss of Nocturnal Erections
[X ] Watery Ejaculate
[ X] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility
Mental
[ X] Emotional Blunting / Emotionally Flat
[ X] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfullness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ X] Lack of Motivation / Feeling Passive / Complacency
[X] Extreme Anxiety / Panic Attacks
[ X] Depression / Melancholy
Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ X] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ X] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes
Misc
[ X] Prostate pain
[ X] Persistent Fatigue / Exhaustion
[ X] Stomach Pains / Digestion Problems
[ ] Constipation / āPoo Pelletsā
[ ] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ X] Frequent urination
[ ] Lowered body temperature
[ X] Other (please explain) (mentioned below)
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What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? None. Just trying to learn whatās causing this pain.
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If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the āBlood Testsā section and link to them in your post)? My doctor tested my blood and claimed everything was OK. I did not receive the numerical results.
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Anything not listed in the above questions youād like to share about your experience with Finasteride? Yes. Please read below. Thanks!
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Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.