PFS symptoms appeared after withdrawal

Where are you from (country)?
United States

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
Googled my Finasteride side effects

What is your current age, height, weight?
Age 24, 5’7", 135 lb.

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?
Finasteride

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
1 mg/day

What condition was being treated with the drug?
Male pattern hair loss

For how long did you take the drug (weeks/months/years)?
2 years

How old were you, and WHEN (date) did you start the drug?
Age 21. February 2018.

How old were you when you quit, and WHEN (date) did you quit?
Age 23. March 2020.

How did you quit (cold turkey or taper off)?
Cold turkey

How long into your usage did you notice the onset of side effects?
I experienced on-and-off difficulty maintaining an erection about 1.5 years in.

What side effects did you experience that have yet to resolve since discontinuation?

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
Loss of Libido / Sex Drive
Erectile Dysfunction
Complete Impotence
Loss of Morning Erections
Loss of Spontaneous Erections
Loss of Nocturnal Erections
Watery Ejaculate
Reduced Ejaculate
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility

Mental
Emotional Blunting / Emotionally Flat
Difficulty Focusing / Concentrating
Confusion
Memory Loss / Forgetfulness
Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
Suicidal Thoughts

Physical
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Pain
Testicular Shrinkage / Loss of Fullness
Genital numbness / sensitivity decrease
Weight Gain
Gynecomastia (male breasts)
Muscle Wastage
Muscle Weakness
Joint Pain
Dry / Dark Circles under eyes

Misc
Prostate pain
Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Hearing loss
Increased hair loss
Frequent urination
Lowered body temperature

Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
N/A

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?
I took a blood test for testosterone levels in October 2018. Result was high: 860 ng/dL. Have not tested since.

I took Finasteride for about 2 years to treat relatively mild hair loss. Around July of 2019, 1.5 years in, I suddenly started having trouble getting and maintaining an erection while masturbating. I also had generally low libido. I attributed these symptoms to the drug and stopped taking it, which resolved the problem after approximately 4 weeks.

In mid-August, my hair loss increased noticeably as expected, so I resumed normal usage of Finasteride. I was fine for about 6 months, until late February of 2020, when I began experiencing the same erection difficulties. On March 2nd, I decided to stop taking the drug once again, for good this time.

In late March, I noticed reduced arousal and an unusual lack of sensitivity in my penis during masturbation. By the end of the month, my testicles had a constant, dull pain (like they were being squeezed) and my genitals were cold to the touch. My penis lost some rigidity and began to take on a small, wrinkled appearance. Orgasms were less pleasurable and resulted in intermittent sharp pains in my testicles. Urinating was also mildly uncomfortable due to a slight burning sensation, but that was very transient.

The worst of the symptoms lasted no more than a week and a half. As of this writing, my lingering problems are difficult-to-maintain erections and very low sensitivity in the head of my penis. Orgasms feel surprisingly normal, but it’s difficult to achieve them; sometimes I just give up. I also think my penis has lost girth (length seems fine) in both flaccid and erect states, and it has a stretchy/floppy quality that wasn’t there before. I still occasionally get morning and spontaneous erections.

Fortunately, I never encountered any of the mental effects that seem common in PFS cases, other than feeling a bit lethargic. I’m still holding out in the hope that I recover fully, but I have a lot of uncertainty about it. And quarantine is probably making it worse, so there’s that.

2 Likes

i used for 3 days , on the 3 day i notest that i cant maintaining an erection if no stimulation , if its stops erection goes back ,

another thing is more dificult getting a erection in the first place

looks like we have low libido or we dont have strength to move the penis

im in 2 months now on this hang up there