PFS Support Group in LA/U.S.

Hello everyone,

I’m in the midst of planning two support group meetings for men afflicted by Post-Finasteride Syndrome. The two closed, safe-space meetings will take place in person in Los Angeles (with the possible option of joining remotely) on Thursday, June 21 and Saturday, June 23 – no cost. If interested in joining, please email me directly (joscof@gmail.com). My goal is to have 15 men come out to each event so let me know if you’d like come. One of my key goals is to create a REAL-LIFE community for men dealing with PFS. Thanks for considering my post!


  1. Where are you from (country)? U.S. Currently living in Los Angeles.

  2. How did you find this forum? I’ve reviewing posts for years now, but have never actually posted something.

  3. What is your current age, height, weight? 32, 5 10, 168 lbs

  4. Do you excercise regularly? If so, what type of excercise? Yes, weights, cardio, yoga.

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)? N/A

  6. Why did you take Finasteride (hair loss, BPH, other)? hair loss

  7. For how long did you take Finasteride (weeks/months/years)? 4 years

  8. How old were you, and WHEN (date) did you start Finasteride? 23 years old

  9. How old were you when you quit, and WHEN (date) did you quit? 27 years old

  10. How did you quit (cold turkey or taper off)? cold turkey

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic? generic

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? 1.25 mg/day

  13. How long into your use of Finasteride did you notice the onset of side effects? 4 years

  14. What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
[X] Loss of Libido / Sex Drive
[X] Erectile Dysfunction
[ ] Complete Impotence
[ ] Loss of Morning Erections
[ ] Loss of Spontaneous Erections
[ ] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[X] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[X] Memory Loss / Forgetfullness
[X] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts

Physical
[X] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[X] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[X] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[X] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

  1. What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? ED medications

  2. If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)? N/A

  3. Anything not listed in the above questions you’d like to share about your experience with Finasteride?

  4. Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

I missed this post, but I would attend another LA meet up if one got scheduled/arranged.

1 Like

I would attend one as well

1 Like

I’ll get the ball rolling on an LA meetup. :sunglasses:

2 Likes

I can’t understand how this post did not receive any replies for months.
Such a show of ZERO support is exactly what makes people give up.
Good to see this a couple of supporters jump in now.
I wonder what came of this support group idea.

I’ll email OP and see what the turnout was. I don’t know if it was lack of people in the area or what.

My goals for the meetup would be:

  1. Connect with each other
  2. Discuss our stories
  3. Discuss things that get us through tough days
  4. Strategize moving forward and finding a cure.
  5. Eat food/and drink with good people.
1 Like

I’m doing a very similar thing myself im trying to connect uk guys :+1:

I’ll stay in touch with you so we can discuss and plan together!