Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.
Where are you from (country)? NJ, USA
How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?). Google
What is your current age, height, weight? 23. 5’9. 125 lbs
What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)? Saw Palmetto Extract
What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? 320 mg
What condition was being treated with the drug? Preventing Hair Loss
For how long did you take the drug (weeks/months/years)? 1 month
How old were you, and WHEN (date) did you start the drug? 23
How old were you when you quit, and WHEN (date) did you quit? 23
How did you quit (cold turkey or taper off)? Cold Turkey
How long into your usage did you notice the onset of side effects? 2 weeks
What side effects did you experience that have yet to resolve since discontinuation?
ED, Nipple Pain, Testicular Pain, Anxiety, Joint Pain, Brain Fog
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.
Loss of Libido / Sex Drive
Loss of Morning Erections
Loss of Spontaneous Erections
Loss of Nocturnal Erections
[ X] Reduced Ejaculate
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility
Emotional Blunting / Emotionally Flat
[ X] Difficulty Focusing / Concentrating
[ X] Confusion
[ X] Memory Loss / Forgetfulness
[ X] Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
[ X] Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
[ X] Testicular Pain
Testicular Shrinkage / Loss of Fullness
Genital numbness / sensitivity decrease
Gynecomastia (male breasts)
[ X] Muscle Weakness
[ X] Joint Pain
Dry / Dark Circles under eyes
[ X] Persistent Fatigue / Exhaustion
[ X] Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Increased hair loss
[ X] Frequent urination
Lowered body temperature
Other (please explain)
What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? Mentioned Below
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)? Mentioned Below
Anything not listed in the above questions you’d like to share about your experience?
Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
I noticed increased hair shedding in August 2021. Started taking SP as a natural alternative to finasteride. Took it for 1 month. After 2 weeks I noticed nipple pain and testicle pain, and I was extremely tired all the time. I was going to bed a lot earlier. I produced a lot less semen, and was having ED. The joint pain from my Ankylosing Spondylitis worsened. I have been taking Enbrel since April for this condition, and also psoriasis. I luckily did not develop severe PFS like many others on here, but it was definitely moderate. I would say about 6 from 1 to 10. I listed my side effects above and I don’t want to spend all day talking about them since we all know what this condition involves. My goal in putting my story out there is to talk about some of the improvements I have made, although I have not recovered completely. I have been reading these forums for months now, and I believe I am taking a slightly different approach to treatment from most of the other people on here.
Supplements I am taking:
Vitamin D 20,000 IU daily
K2. 100 mcg
Zinc 50 mg and Copper 2 mg
Boron 3 mg
NAC 600 mg
Life Extension – Mega Benfotiamine 250 mg
Life Extension – B-Complex
Standard Process – Collinsonia Root
Nature’s Way – Gotu Kola
Choline & Inositol 500mg
Cod Liver Oil
Solgar – Fish Oil
Solaray – Sage
Alpha Lipoic Acid
Folate 1,333 mcg DFE
Biotin 1000 mcg
Magnesium Glycinate 400 mg
Quercetin 500 mg
Bodytech – Arginine AKG
Standard Process – Dermatrophin PMG
Wheatgrass Juice Powder and L-Glutamine. 2 tsp in cold water on empty stomach
It doesn’t really matter what brand you use for supplements as long as they are moderately high quality. Make sure there are not a lot of filler ingredients such as seed oils.
I believe my being on Enbrel, which is a TNF-Blockers may have prevented me from developing Severe PFS, although it obviously did not prevent it entirely. Reducing inflammation and finding some way to normalize the immune system seemed to have helped me. I take the Standard Process Dermatrophin for my psoriasis, but the theory behind it is that you have an autoimmune disease that attacks certain parts of the body, and you take a dessicated extract from an animal organ which acts as a decoy for your immune system to be preoccupied with, which allows your organs to heal. I am going to purchase other products from them soon. But these must be used in conjunction with giving your body the resources it needs to heal itself, and also the right environment which includes low stress, good diet, and adequate sleep. You must stick to a sleep schedule. I have been on keto for a couple months now, and for me personally it has helped a great deal. I went back to eating a bunch of carbs for a couple days and immediately felt horrible. For me it is a high protein type of keto, bordering on carnivore. I stopped drinking coffee and instead drink tea. I took NSAIDS for almost 2 years for my joint pain, which is extremely harmful for your gastrointestinal system, which is why I use wheatgrass and L-Glutamine. Finally, I take a lot of vitamin D because high doses have been shown to be helpful in autoimmune diseases. I know many people avoid it because it is a 5-ARi, but I believe there is more harm in avoiding it than taking it, and I think the reason it may have those properties is because many Vit D supplements also contain Sunflower, Safflower, or Soybean oil, which must absolutely be avoided. The same goes for Zinc, it is a necessary nutrient for the human body to function, also vital in the production of testosterone, so you are likely doing more harm than good by avoiding it. Obviously I exercise too, which we should all be doing. Especially high intensity sprinting or any type of cardio.
*None of this is medical advice. I don’t expect anybody to cure their PFS with this information, all I am doing is sharing what has helped me. If you decide to purchase these products, you don’t have to buy the brands I listed, you can buy cheaper options, but make sure they are decent quality. I would suggest not to buy any supplements from Walmart.
I will be awaiting questions from everyone.