Contact the Foundation via their website to let them know. It could be an issue with PayPal, since that’s what they use to process donations.
You added the Post-Finasteride Syndrome Foundation to Merck’s Wikipedia page? Well, whoever you are. you’re my new hero!
The world needs to know what monsters the Merck “family” are. And this is a great start.
Sincerely,
Kenneth Frazier
CEO
Merck & Co.
Not that it is really any of my business, but I’ll ask anyways… who has made a donation of some sort to the PFS Foundation? I would love to think that because it is now a safe option, everyone who can afford to do so is chipping in. Anyways, thanks to the foundation of course, and thanks to anyone who can contribute now or in the future! 
I plan on giving when next paycheck comes in. I think it would be helpful if they made public who gave what. Yes I know we all have pseudonames but I think it would still help keep us accountable. I think in this case ego could work for us.
Hope I’m not raining on the parade, but I just want to know how well screened/researched the CEO is before we all begin putting our hope in his hands. my apologies ahead of time if I’ve missed something on this forum; I only got a message from Mew/Propeciahelp website today regarding this foundation.
the ceo is a good man, you can trust him
Not an unreasonable question at all. Considering the personal connection the CEO has (in fact all the board members have) and the extreme financial generocity they have displayed I do not think their motives or background are in question.
i can hardly doubt on a propecia victim’s father
I would strongly object to a list being made public of donates with names attached. I don’t want my privacy infringed in this way, I don’t want people to be able to know that I have donated. I realise that not everyone who donates is a PFS sufferer, but people will make the connection regardless, and I don’t want an organisation to declare to the world that I have donated. Some brave people have come out onto TV and given interviews in the media. This is very brave, but I don’t have the guts to have this information about me in the public domain.
Please can a mod confirm that no publication of donors will be made?
This is a question for the foundation itself but to my knowledge they don’t have any plans of making the names of people who donated public.
They realize this is a private issue for many men. There are also legal considerations and privacy laws to consider. So, I wouldn’t worry about it.
This isn’t a contest to see who donated the most, and at the end of the day all that matters is getting research initiatives going.
Brilliant!!! Light at the end of the Tunnel. I almost cried when I saw this.
How did the people involved meet? Were Mew or Awor or anyone else on this site directly responsible for bringing them together? What motivated them to wanting to help us?
John Santmann and Rosemary McGeady’s son committed suicide due to Propecia (see news on propeciahelp.com homepage – Merck hunger strike photos).
I can only imagine the toll this took on them and this is their way of trying to make a difference.
Ok, I didnt realise that they were Randy’s parents. Wow.
A family that suffered such a loss is over any malevolent suspect
this is great for our cause.
i heard that another parents victims is now aware and want to speak to the media
Everyone should email and call the following FDA officials and make them aware of the foundation’s existence. And also demand that the FDA work with the PFS Foundation.
Tatiana.oussova@fda.hhs.gov (no number available)
Kavita.Dada@fda.hhs.gov 301-796-3105
My email
Dear Dr. Dada,
My name is xxxxxxxxxx. I was on the front page of Yahoo! in an article discussing the devstating and permanent Propecia side effects along with being featured on ABC News with Diane Sawyer and NBC News with Brian Williams. I was also a guest on a CNN Special with Don Lemon. I used my alias, Kevin Malley, in all three broadcasts.
I would like to bring to your attention the Post Finasteride Syndrome Foundation. The PFS Foundation is for victims of Propecia (finasteride). Propecia victims fully expect the FDA to step up to the plate and work with the PFS Foundation in finding treatment options for the devastating symptoms of PFS–symptoms that include loss of libido, genital numbness, impotence, muscle waste, dementia.
I, and several other Propecia victims, have other media appearances scheduled. It would please us to say that the FDA is no longer ignoring the problem and is working with the PFS Foundation in finding treament options for Propecia victims.
Please contact the PFS Foundation for further information how the FDA can help at pfsfoundation.org/contact/
Sincerely,
xxxxxx
Too bad government doesn’t give a shit about people, not even their own employees. The only thing the united states government cares about is two things…
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Liability
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Bad press
That’s why I said I, and several other Propecia victims, have other media appearances scheduled. It would please us to say that the FDA is no longer ignoring the problem and is working with the PFS Foundation in finding treament options for Propecia victims.
True that. I’m sure one of these lawsuits is gonna cone through too and force Merck to throw a “couple dollars” into the foundation.