I can’t believe the progress that has been made in the last few years. It is actually really impressive. For so long we were fighting a desperate fight trying to get recognition for these terrible persistent side effects that Finasteride causes. But now we finally have got the ball rolling and things seem to be moving faster and faster in the right direction.
I’d just like to say a big thanks to everyone that helps pushing this forward!
@Mew:
Some questions:
If I want to donate money to bring the research regarding PFS forward, is the PFS Foundation the organization you think I should donate all the money to? Or are there other researchers or organizations as well that I should divide the money between?
Since it now is stated in the prescription information for Propecia that is can cause persistent side effects, is there a possibility that we could contact the FDA and request them to force MSD to fund research to find out what causes these side effects (since MSD is the manufacturer of the drug that causes these side effects)?
I’m not aware of any other organization/foundations that are requesting funding for PFS research initiatives. I would be very wary of any other potential “copycat” organizations that may crop up, at this stage especially.
The PFS Foundation has just launched. Per their website, one of their mandates is to help Propecia victims via funding of research to investigate PFS.
As we all know, this is a real issue with a real cause and is affecting numerous men worldwide – so much so, that a Foundation has been setup to try and solve the problem. Therefore, in my opinion the PFS Foundation is THE organization we should support through donations towards PFS research.
If you’ve been saving your money to make a donation, now is the time – visit pfsfoundation.org/donate and donate today.
That’s a question for a lawyer.
That said, you should still submit your adverse reaction reports to the FDA regardless (Medwatch 3500 form) – fda.gov/Safety/MedWatch/HowToReport/DownloadForms/default.htm
The more reports they have, the more action they are likely to take regarding labeling changes, black box warnings, withdrawal from market etc.
This is a monumental moment. thanks to all involved!
Amazing that Dr. Santmann got this effort going. On behalf of all 5,000+ PropeciaHelp members, I applaud him and his fellow board members, Rosemary McGeady and Matt Weintraub.
Speaking of whom, did you notice that McGeady is both a medical malpractice attorney AND a cardiologist? Sounds like just the sort of woman we need to put Kenneth Frazier – the evil Merck CEO – in his place.
I do not care how many billions of dollars and slick-ass attorneys Merck may have, the one thing they will never have on their side is the Truth. We know it. The media knows it. And juries across America know it.
I agree about Merck and Frazier. Why would they bother dragging out the inevitable? The quicker they own up to this the easier the whole process will be on them. Why deny something that is going to be thrown in their faces???
Man, if I were Frazier I would be very, very nervous on a lot of levels!
quick question (and possibly a stupid one) … how can we track the donations that have been made?
I have been told that is something that will be possible once the application for NPO status and such is formally approved by the government.
Spread the word to the corners of the internet where PFS victims may be lurking that there is now a way to support the research initatives! Hairloss sites, bodybuilding forums, anywhere a sufferer might be!
Tell your families! Sympathetic friends! Over the last two years much has been achieved, keep the momentum building until 5AR inhibitors are ripped from the market and a cure is found!
Pharmaceutical companys, are some of the richest companys in the world. They have enough money to back there asses, I can’t bet there going to blame there own product for potentially causing permanant side effects. Unless until some external research is done, still then, i’m sure they will blame some underlying issue.
of course they will, that is exactly what they are doing, as we speak … the point is, the truth will come out full force, it is inevitable
I hope the judges will force merck to donate a lot for it so we will make a major step forward.
There’s your deserved Frazier!! ajaaj
Frazier Feck!!! aaaajaa
Yeah you can blame the pharmaceutical company. You can also blame the doctors for being so negligent.
September 2003, Yahoo group formed - July 2013, PFS foundation formed
Even if the hundreds of men involved in lawsuits only donated a few hundred each, this foundation will have lots of money very quickly.
July 2012
Now thats brainfog.
Update PFS side effects: may make you believe you are time traveling. 
I attempted to donate today, but the system would not accept my Australian data (state, phone, etc.). Thanks.