I have been lurking on this forum for the last year or two, but after reading this post I thought I should finally chime in.
I too developed persistent PFS-like symptoms following a cycle of anabolic steroids. I used Sustanon when I was 30 years old (a steroid that I had used several previous times in my life with no problems), and immediately afterwards developed a near-total loss of sexual function. I am now 38. My condition has deteriorated significantly over the years. In addition to a complete loss of libido, my penis has shriveled up, I have not had a morning erection in 8 years, and I was recently diagnosed with a venous leak. I have a constant urge to pee, and I developed severe insomnia which has continued to worsen over the years.
I have had every hormone level imaginable tested, and have tried countless treatments, including hormones, peptides, supplements, shockwave therapy, platelet injections, and physical therapy. I am currently treating with a urologist who specializes in sexual dysfunction and works with PFS patients, as well as a pelvic floor therapist. While I have had a handful of very brief (i.e., less than one week) “recoveries” over the years in response to various treatments, nothing is significantly or permanently helping.
I will do my best to post a detailed member story sometime soon, but in light of the subject matter of this post, I thought this would be a good time to at least briefly share my story.