I’ve noticed in the past that 23 and Me has asked users if they have taken Accutane, and if they have suffered side effects from it.
This is a random idea, but I wonder if we should try to create a petition requesting 23 & Me release anonymized data regarding Accutane (information which they might already have) and/or if they would ask users about PFS syndrome. I’d imagine this could be quite invaluable.
Does anyone know if they would do this for the Foundation, or sympathetic physicians or researchers, by any chance? Has this been tried or considered? If so, what are the obstacles?