What’s up boys? First time poster and long time reader. Couple things first-
- I used propecia for approx. 8-9 months in 2009 also Zoloft 25mg for 6 months in 2011
- Was not aware of PFS at the time so did not relate any noticed symptoms to the drug (btw I can fuckin shoot myself for not reading up on this vile pill initially)
- I do not mean any disrespect to the people on this forum as I have much respect for you and the condition. If I’m thinking about me all the time with it that means I’m thinking about you guys as well. We are all part of this unfortunately. So forgive me if I don’t fill out that whole grid thing as my symptoms are a short list.
- Symptoms notice- mainly brain fog (cured) on its own or by diet/supps, depression and sleep but always had issues with that anyway
preface- erections are mostly fine especially if I lay off the porn and semen seems fine to me in terms of appearance and quantity.
but the main thing for me which is absolutely devastating is the subject of this post. Ive seen 3 urologist in NY and 2 of them were top guys all diagnosed me with insensitivity and no treatement or cure. Big surprise. I have not don’t any sophisticated sensory exams. the only thing was the needle and cotton thing they do and still charged me 400 bucks.
anyway, it is only slightly sensitive on the sides and the bottom. the top has virtually nothing. And the head has nothing and is Pale and dead I would say. I can feel tempature and pin pricks in some areas. I remember when I could just manipulate the glans and cum just from that so I’m demoralized by this. i’m truly,truly depressed boys. I’m afraid I wont be able to maintain an erection unless I use meds which I really don’t want to. Plus we all deserve to have the penetration of a penis into a vagina feel like the greatest thing ever and it’s been taken away.
So thanks to this forum I contacted Dr. Jacobs. Btw really great man really. He really wants to help and is a genius. It’s invaluable to have him in our corner.
He checked out my blood work and he said my levels don’t coincide with PFS as all Testosterone total bio and free levels were a little high over the mark and everything else didn’t alarm him. These tests were take late 2013.
So then I mentioned the theory of lack of dht and fucked up receptors and pretty much whatever I’ve read here and he said “I really don’t believe that is the case”. Ok, he’s the expert. So what gives? The starvation of receptors and nerves makes a lot of sense but he’s the expert so I must accept his answer right?
I discussed the possibility if minipress and says we will keep that option on the table along with dopamine meds for increased sexuality. perhaps those will override my lack of sensitivity. He prescribed me Ativan 1mg twice a day and it’s helped a little but obviously didn’t give my sensitivity back which is all I want in the whole WORLD. I know there are guys here who are worse then me and I’m not trying to be an asshole but this has put my life on hold guys. I don’t go anywhere and barley see anybody. How am I supposed to explain this to a girl. WTF?!
I know I threw out a lot but if anybody can offer help to me please please please boys. Anything. A hundred different causes are going through my head, pelvic floor therapy, prostate apatosis, etc. I CANT TAKE IT ANYMORE. Totally suicidal over this. So please men. Help me out.