Penile Fibrosis after use of Propecia

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)?

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)

What is your current age, height, weight?

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?

What condition was being treated with the drug?

For how long did you take the drug (weeks/months/years)?

How old were you, and WHEN (date) did you start the drug?

How old were you when you quit, and WHEN (date) did you quit?

How did you quit (cold turkey or taper off)?

How long into your usage did you notice the onset of side effects?

What side effects did you experience that have yet to resolve since discontinuation?

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
[ x] Loss of Libido / Sex Drive
[x ] Erectile Dysfunction
[ ] Complete Impotence
[ ] Loss of Morning Erections
[ ] Loss of Spontaneous Erections
[ ] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ x] Reduced Ejaculate
[ ] Inability or Difficulty to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[ ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfulness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ x] Extreme Anxiety / Panic Attacks
[ x] Severe Depression / Melancholy
[ ] Suicidal Thoughts

Physical
[ x] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ x] Muscle Weakness
[ x] Joint Pain
[ x] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

Serrapeptase, nattokinase, Arginine, citrulline, DHEA with Pregnolone, B-complex, Taurine, Melatonin with theanine, Yohimbe, horny goat weed, Ginko, ginseng, CoQ10, Shitake Mushroom, pycnogenol, Ultra Hard

Medications: buprion with trazedone but stopped. Ive used HCG 5000UI, Anavar, proviron, clomid. Im using tadalafil 5mg with pentoxifylline, VED for 8 minutes 2 time a week

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?
All hormomes are normal Test is high 400 to high 600nl, DHT 45nl, and tbe rest like cortisol, prolactin etc are ok. No diabetes nor cholesterol.

Anything not listed in the above questions you’d like to share about your experience?
Did a doppler and I have mild fibrosis, I think is in the tunica and corporar. Is causes lost of sensitivity, vascular insufficiency and a venous leak because of elasticity issue.
Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
I took propecia when I was 27 and started loosing erection after discontinuing the medication. I thought it was psychological because I was getting divorced and because I stop taking that bullshit. Normally, side effects go away when discontinuing a med, but finasteride is worst than heroine…seriously. I stopped and I had anxiety with major depressive disorder, ED etc. I went to many Docs and they would put me in doubt, they didn’t believe me and It got worst over time. When I finally decided to go to a sexual specialist, he did a doppler and even asked me if I used a drug for hair loss like finasteride, I said yes. He specifies that my ED is from propecia…on my document study. Spoke with Goldstein and other uros and I need shockwave, this might help. I need opinions

2 Likes

Welcome, and I’m sorry to hear your story.

Did any of these improve or make worse any aspects of your symptoms?

Depression and anxiety has gone 90%, I sleep better and exercise better. Anavar and proviron gave me solid muscles. HCG bigger testicles. I still leak cuz of the fibrosis. Maybe I need shockwave. Also, no migraines…it stopped

1 Like

How about libido?

So what got your depression/anxiety under control the best do u think?

Libido goes up and down. Is not stable. Remember, I lost sensitivity and I guess when the penis feels pleasure your brains recieves those signals as well

1 Like

So hard to tell. Could have been wellbitrin, trazedone and time. Couldn have been supplements

How much time?

A year and I stopped. Now 90% of the times I sleep well more than 6 hours. Anxiety Is was causes the insomnia.