It wasn’t a research proposal Gelhead, just an idea of where things should be headed.
Is anybody happy with a research project every 2 years? … that might lead to another research project in 2 years … that might lead to another research project in another 2 years after that … or might lead to nothing at all?
Is there another way? I think so.
Trying to make something for publication a priority is a waste of time. Just take a couple of guys - Mew and Awor - and try and find something wrong with them. (At least a proper test for peripheral neuropathy/demylination for once!)
If they still need partcipants, I have told them numerous times that I am willing. They said I didn’t qualify because I took anti-depressants for two months two years before I took Propecia, three years before PFS. I also took Welbutrin for a month or two, as my doctor’s lame attempt to treat PFS.
I have PFS, have for three years, and would be an excellent candidate. I KNOW some of the others have taken anti-depressants as well, I’m just being totally honest.
If they change their stance on this and pay for it, I would fly out whenever. I also have a friend in Texas with PFS who could participate as well if they didn’t care that he is currently on anti-depressants.
i would imagine the reason the test subjects need to be cleaner than clean ie never used anti depressants etc is if these tests are ever used in a courtroom the evidence has to be bulletproof,if test subjects had say a history of mental problems etc the merck lawyers would tear them to shreads,we all know its not a few months use of prozac ten years ago what has done this to us but courts wont see it that way…
i completely understand. i’m just offering to go if they change their stance. that would be two extra participants who have full-blown PFS. But I understand either way.
Because the guys are busy following homebrew bs. They dont have time for studies. They want the quick fix. They are in denial mode. They will be looking for the quick fix for the rest of the decade.
Is the intention to help people or just for court? I personally don’t give a fat fuck about a lawsuit. I just want to know what happened and if its fixable. You guys are not going to ever get compensated appropriately from a lawsuit. That should not be the focus. Stop eliminating people from the study(s) and you will make progress. If Mew and Awor showed some leadership here then maybe we could get more people to the study. Instead of being a lazy mutherfuckers. Letting people make up fairy tails about neurosteroid estrogen dominance.
I realize they are probably sick of arguing with people but this site is its own worst enemy. The first things people do when they land here are look at recovery story’s. Then they try fasting, progesterone, Andro hard, TRT, DHT, ect…
Depressedguy would be the best guy to ship off to the study. He got completely destroyed by Fin. after just a few pills. He can’t work because he is completely disabled.
The intention is to identify the mechanism, by which Finasteride induces severe long term side effects in some people. Obviously this information will be vital for BOTH! the lawsuit and discovery of any treamtent/cure. Without this information it is virtually impossible to find a cure/remedy. I think winning in court would be very beneficial for all of us, as finding a cure will cost money. One avenue to get this money, would be wnning in court. But the study addresses both sides: The rout cause is vital for the court and is the foundation for treatment.
We need to get this study filled, pls participate you are located in the US!
This is from the PFS foundations website:
Current research is focused on determining underlying biologic mechanisms for the syndrome at a molecular level, as will future initiatives. Specifically:
Genetic risk factors for PFS
Androgen receptor expression in PFS patients
Hormonal profiles of PFS patients
Full genome gene expression profiles and pathway analysis in PFS patients
Proteins encoded by androgen responsive genes (ARGs)
Neurosteroid levels in PFS patients
Epigenetic chromatin alterations in PFS patients
are the studies still open? I’m wondering if they’re desperate enough to pay for my trip from Australia yet lol.
I can’t believe there are so many people in the US with this fucked up condition who won’t go and participate in studies by two leading institutions. it fucking baffles me. if I had a spare $4000 i’d be on the next plane there.
