Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.
Where are you from (country)?
How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
What is your current age, height, weight?
34 y/o, 5’9", 160lbs
What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?
What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
What condition was being treated with the drug?
For how long did you take the drug (weeks/months/years)?
How old were you, and WHEN (date) did you start the drug?
34 y/o, Aug 2020
How old were you when you quit, and WHEN (date) did you quit?
34 y/o, Sept 2020
How did you quit (cold turkey or taper off)?
How long into your usage did you notice the onset of side effects?
What side effects did you experience that have yet to resolve since discontinuation?
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.
[ x] Loss of Libido / Sex Drive
[ x] Erectile Dysfunction
[ x] Loss of Morning Erections
[ x] Loss of Spontaneous Erections
[ x] Loss of Nocturnal Erections
[ x] Reduced Ejaculate
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility
[ x] Emotional Blunting / Emotionally Flat
[ x] Difficulty Focusing / Concentrating
Memory Loss / Forgetfulness
Stumbling over Words / Losing Train of Thought
Slurring of Speech
[ x] Lack of Motivation / Feeling Passive / Complacency
[ x] Extreme Anxiety / Panic Attacks
[ x] Severe Depression / Melancholy
[ x] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ x] Penis curvature / rotation on axis
[ x] Testicular Pain
[ x] Testicular Shrinkage / Loss of Fullness
[ x] Genital numbness / sensitivity decrease
[ x] Gynecomastia (male breasts)
Dry / Dark Circles under eyes
[ x] Prostate pain
[ x] Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
[ x] Vision - Acuity Decrease / Blurriness
[ x] Tinnitus (ringing or high pitched sound in ears)
Increased hair loss
Lowered body temperature
Other (please explain)
What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
Cialis 5mg, Vitamin D 1,000iu
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?
Anything not listed in the above questions you’d like to share about your experience?
Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
Firstly, I want to express my deep appreciation for this forum. The members here are an extremely strong and dedicated community. I imagine my story is familiar to many. A couple of years ago I became obsessively distressed with my hair loss. Minoxidil wasn’t working after a year of taking it. After much deliberation I decided to hop on finasteride. While I was somewhat aware of the risks, I foolishly thought I was invincible. I convinced myself that I would be in the 90%+ group of users with no side effects. I thought even if I did experience side effects, I would discontinue the drug and they would go away.
I could not fully comprehend the level of sexual dysfunction this drug causes. It’s not just reduced libido, it’s absolutely ZERO libido – a complete disconnection between mind-dick. It’s not just erectile dysfunction, it’s an inability to achieve a fully hard, pre-fin erection even with use of Cialis. At best I’m getting 75%, but that’s only if I’m really “trying”. Anything sexual has become an anxiety inducing chore rather than a daily delight.
And then there are the other sexual side effects I was not warned about. Shrunken testicles and scrotum. Tissue changes to penis, which has become all veins and no girth. Pain in my prostate and, this is something I haven’t seen with anyone else, pain along one of the veins underneath my penis – it’s painful to the touch, and has been that way since week 2 of this nightmare. Has anybody else experienced this?
Finally, I have a bunch of the non-sexual PFS side effects, which came as a complete surprise to me – a lack of energy/motivation (especially when I wake up in the morning), anhedonia, tinnitus, blurred vision, brain fog.
Needless to say I’ve been extremely depressed since developing PFS. I made the biggest gamble of my life and lost. I knew what I had to gain in slowing down balding, but I really didn’t appreciate what I’d be giving up. And by the time I found out, it seems it’s too late to do anything about it. It’s a soul crushing situation to which I’m sure so many of you relate. It’s been over 4 months and I still struggle with the idea that this could very well be permanent.
Anyway, I’ve been lurking for a while and thought it was time to tell my story and seek support and solidarity from the forum. Thank god this place exists. You are all very brave souls fighting a war that you did not sign up for. I truly hope we all can improve and get our lives back