OK going to try to fix this, whatcha think?

Member Stories
#21

1 Month off now.

Day 6 on clomid/tamoxifen and although I do not believe to have gotten worse… I do not feel I am getting better either.

No morning erection today. Sleep is continuing to be terrible, thought this was suppose to recover quickly? When I took it a few years ago it seemed like I slept even more afterward, than again I didn’t have the “type” of crash I had this time around. I get between 3-5 hrs a night and can’t get back to sleep.

Mentally I am up and down. (clomid and tamox originally made me feel better now the swings are kicking in) Gonna reduce my dose.

I can get an erection with focus and manual stimulation, but even then its kind of a rubbery/floppy erection, not like the rocks I used to have. Semen is less than a teaspoon or so, B4 ever taking fina, it was more like 1-3 tablespoons.

Penis appears to be somewhat thinner, length is also slightly smaller… lost maybe a 1/4 inch… that might be because I’m not getting fully erect anymore thou. When I’m flaccid, its depressing… thou I’ve always been a grower not a shower.

Balls are slightly smaller… I’m beginning to fear the worst… because if I don’t see improvement I know I cannot live like this.

Why are there not more people looking into this? Are our problems with fina really that rare? Nobody cares? I see people posting with problems all over the net but Merck does nothing, we need to organize… Merck should be researching and paying for our treatment at the very least.

#22

Take a look at this pct

uk-muscle.co.uk/steroid-testosterone-information/102444-famous-power-pct-program-dr-michael-scally.html

I’m thinking of trying this. What do you reckon

#23

That’s a lot of hcg, it looka good thou due to the short amount of time…

Also it remains that we don’t know if our condition is related to low test and androgen lvls. There are a few reasonable theories going around, such as 5 ar 2 deficiency, receptor insensitivity, thyroid issues, neural damage. One idea of mine is that it could related to a shrunken prostate… maybe a smaller prostate means less 5 ar 2 where we need it most… in the penis and testicles to stimulate dht release.

#24

Well my lh and fsh and test is quite obviously low so I am gonna give it a shot. Others with normal ranges maybe not.

I have known of a couple of people with PFS that went on TRT to good avail. Gotta figure out where I am gonna get the stuff from and then i’ll give it a go and feedback.

I don’t buy this neural damage and stuff because if that was the case then no one would see even short lived improvement from exogenous testosterone or natural stimulation of test etc etc. I took proviron and for several days I was completly back to normal before I crashed. If I had 5 ar deficiency etc I would not have even experienced that short lived return to normality!

#25

I need to see my bloodwork from when I crashed… should have it this week… maybe it will give us some insight, I really don’t want to go on trt… like to have kids one day. Trying to discern the physical and mental sides and how they all fit together is daunting.

#26

Me neither for the same reason. I took the proviron for a short while in the hope that it might kick start me being that it was dht as opposed to testosterone. Stupid really but it did give me hope that at the very least it was a possibility I could feel normal artificially.

I am hearing good things about dear antler velvet. It increases IGF which is apparantly what a lot of PFS sufferers are low on. I am all for trying natural things.

I am too getting a full round of hormone results through this week and am interested in seeing what my values are. This is beyond libido now, my behaviour is appalling. I am not making excuses for it but I have no tolerance to anything and my emotions are all over the place. I flipped out with my brother over nothing earlier today.

#27

Yes there is something wrong in our brains. I walk around lately and feel like I am constantly recovering from a hangover… I don’t know if its from the lack of sleep or what. Libido is terrible, no brain penis connection at all, tried watching porn today… nothing its unreal…

And of course I have all these girls interested in me now, figures.

#28

Oh my god, I can’t believe this is happening…

Last 3 days, the morning erections have subsided… yesterday I reduced my clomid down to 25 mg/ED and will taper down to 12.5/ED next week.

Its been just over a month since quitting cold turkey and for a while (1.5 weeks) after I came of my erections were ok, now they are shit and I have brain fog and terrible sleep STILL.

All I think about is how I cannot live like this, how I can’t have sex with a woman like this. I wanted to have a family get married how is that going to be possible now? These are the things that go through my head all day now, that and suicide… which given my profession, the means are readily available.

Is there any chance I might wake up one day and be at least 50-75% better? Like where I can still get a good hard on even if I have to take viagra…

I’ve been in contact with an attorney regarding a class action lawsuit. He is very up to date on whats going on with fina and mentioned about from what he knows the current theory is that fina altered gene expression in some way. He thinks the cure maybe in stem cell research somehow… but right now that seems decades off and my life is running short…

#29

why are you on taking clomid when you havent even been off fin for a month? You probably made yourself worse by doing that.

#30

Why do you think it would make things worse?

#31

well, not necessarily worse, but it might have disturbed things and caused you to not recover normally… YOu should have at least waited 2 months before doing anything imo…

#32

It’s made me feel better mentally and I had morning erections for a few days after I started it… also some members have reported recoveries by taking it soon after finasteride cessation.

#33

for how many days did you use proviron. you know it is DHT and can not turn into estrogen so we can not blame spkike in estradiol here.What is left then? The answer is simple our Body is rejecting our own DHT or Testosterone now.

#34

But why would this occur with us, and not all men… why would our cells change in such a way but other men’s not. I know 4 other people who have taken it and not reported the same problems I’m having, some haven’t noticed anything.

It doesn’t seem to make any sense that it affects some men so much greater than it affects others.

#35

I messed about with it for about 2 weeks. I had been taking zinc 50mgs regularly for about 3 weeks before hand and starting to get bigger erections. Then I took one tablet of proviron and although my loads were still small I was horny as hell. Next dat took another same thing. Was really excited. Decided to be cautious for a while and stopped. libido remained high for several more days. then crash. Took some more proviron, nothing. Tried a higher dose, still nothing. Decided to stop messing around. Very possible it has something to do with E2, perhaps even dropping too low!?!? Who knows. My labs have come back as low e2 and high e2 so it is shooting about!

#36

I think its genetics.some people get sides from alcohol and some don’t depending upon genetics.

#37

if you can get DHT cream try it. apply it to your male part only and see what happens, it is there where DHT and 5ARs are in higher concentration. It should tell us whether DHT is working or not and if you get +ve response then it means your 5ARs are not working there but plumbing is intact. dont apply to all over body it is suppressive to LH and FSH.

#38

Then explain why some ppl are losing their hair just as they were not on propecia…

#39

I am also loosing hair again after SP but I can say it is not now MBP but something else. Not only that before my hair was very thick and shiny but now are very thin and no shine dull and weak as if there is no life in them. I strongly believe this time hairloss is not by DHT but something else

#40

I’ve tried the DHT cream. Just once… nothing. Though I did feel my prostate tingling when I went to bed.

I stopped using it because it is surpressive.