Seems I haven’t posted on my own thread in 8 years. Since I don’t come on here much anymore, although I do actively pay attention to developments in the PFS community, I thought I might talk about some things.
I saw mention a few months ago of someone saying “people have recovered via meditation”. I think he may have been referring to me. I did not recover via meditation, simply a combination of meditation, diet, exercise and supplements have made dealing with PFS considerably easier. As has not focusing so much on it, however this is extraordinarily difficult especially for new PFS guys and guys who get a really bad case of it like I did.
I am certain PFS does alter aspects of the physical neurological structure of the brain. Specially related to the left hemisphere, portions of the brain that control emotional strength and emotional regulation, No surprises there, since what 5 AR inhibitors do is feminize you. Of course this amplifies depression, anxiety and other aspects of the weak psyche. It also however appears to impact the entire nervous system through the same mechanisms. Affecting your sexual response and overall energy levels and such. None of this is surprising to anyone whose been here. We know we are dealing with an altered hormonal state that impacts the nervous system and various organs and systems.
I see there are several interesting theories on here now about the mechanisms by which the androgen receptor is impacted, epigenetic changes and such that cause the cascade effects on the body and mind. I have found ways to specifically mitigate the cognitive side effects by using meditation and focusing myself. I do however still have the condition to a considerable extent even though my side effects overall have noticeably improved over the years.
I haven’t been on here in so long. I don’t know any of the new guys… I don’t know if there have been anymore suicides or not. Several guys I know from way back have also moved on somewhat and many improved considerably but like me they still have PFS. Some even went on to have families and children including myself.
For me the biggest complaint now are the sexual side effects, lack of energy/drive and the toll PFS seems to be having on my body overall. Liver problems and back problems seem to be exacerbated by the hormonal effects of PFS. I can’t seem to recover like I used to. Yes getting older is some of that but not to this extent. My grandfathers can still get around in their late 80’s and 90’s but my back pain is so bad at times I use a cane at 37. My sexual side effects are controllable to some extent. It seems it varies considerably by the day.
I hope I can live to see a day when I can at least experience part of my life again feeling at least somewhat like I used to. Its been now 9 years since I first found this website and we’ve made progress but still no closer to finding a cure or treatment. As I said years ago however, if they keep selling this crap, people are going to keep getting hurt and eventually they will have to face the truth about what this poison does to people.
Good luck and maybe I’ll check back in sometime in the future.