New Member Story-Urinary

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)?
USA

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
Google Search

What is your current age, height, weight?
29,5’9,155lbs

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?
Finasteride 0.5-1 mg

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
0.5mg daily for 1.4 years, took 4-6 month brake, started 0.5 mg every day again, last 3.5 weeks switched to 1mg every day

What condition was being treated with the drug?
MPB

For how long did you take the drug (weeks/months/years)?
in total 2 years

Date when you started the drug?
around 10/2018

Date when you quit the drug?
5/2/22

Age when you quit?
29

How did you quit (cold turkey or taper off)?
cold turkey

How long into your usage did you notice the onset of side effects?
1-2 months for 0.5 and 3.5 weeks for 1mg

What side effects did you experience that have yet to resolve since discontinuation?
Need to urinate in small amounts when laying down, strong urge to urinate but only dribbles. After taking 1mg for 3.5 weeks normal day urine output is gone(if i drink a bottle of water only 15% will come out in dribbles), urge to urinate when sitting and laying, only small amounts of urine, very slow dribble. Developed tenderness of breast tissue, not full gyno but can see it forming.

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
Loss of Libido / Sex Drive
Erectile Dysfunction
Complete Impotence
Loss of Morning Erections
Loss of Spontaneous Erections
Loss of Nocturnal Erections
Watery Ejaculate
Reduced Ejaculate
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility

Mental
Emotional Blunting / Emotionally Flat
Difficulty Focusing / Concentrating
Confusion
Memory Loss / Forgetfulness
Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
Suicidal Thoughts

Physical
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Pain
Testicular Shrinkage / Loss of Fullness
Genital numbness / sensitivity decrease
Weight Gain
Gynecomastia (male breasts)
Muscle Wastage
Muscle Weakness
Joint Pain
Dry / Dark Circles under eyes

Misc
Prostate pain
Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Hearing loss
Increased hair loss
Frequent urination
Lowered body temperature

Other (please explain)
after switching to 1mg daily I noticed thin and small stools.

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
none at the moment

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?
will post when my blood test is available

Anything not listed in the above questions you’d like to share about your experience?

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
3.5 years ago I started to take 0.5mg of finasteride for MPB. Roughly 1-2 months in I noticed breast tissue forming on left side. Any time I would lay down I would get the urge to urinate but only dribble or small amounts would come out. Took constant back and forth before I could fall asleep. About 1.4 years in I took a 4-6 month brake ( I do not remember the exact months of how long). During that brake elevated breast tissue subsided but I do not remember if my urinary symptoms when laying down/sleep subsided. ( I wish I wrote it down). after the brake I decided to restart 0.5mg daily, in a couple months same two side effects again. Fast forward to 3.5-4 weeks ago I decided to switch from 0.5mg to 1mg daily. First noticed minor brain fog/pressure in head but that went away in week 2. On 4/27/22 I noticed my normal day urine output was extremely low. If I drank a bottle of water only 15 % would come back out but in dribbles. I had to push my urine out to start the dribble. This time around I also had the urge to urinate when sitting down. When laying down or trying to sleep the urge to urinate is much greater than before when I was taking 0.5mg. My last dose was on 5/2/22 after I made a conclusion that finasteride may be related to this issue, that was the only thing I changed. Will be seeing a urologist once my referral goes through.

2 Likes

Hi @paulk, welcome to the forum - I’m sorry you’re going through this.

At this stage, i think it’s best to just take good care of yourself, and wait for a few months. Many see improvements in their side effects in that timeframe.

1 Like