New member story - A severe case from Israel

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)?

Israel

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)

Google

What is your current age, height, weight?

23, 1.81m, 80kg

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?

finasteride

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?

1mg/day

What condition was being treated with the drug?

mpb

For how long did you take the drug (weeks/months/years)?

5 years

Date when you started the drug?

2019

Date when you quit the drug?

2024

Age when you quit?

23

How did you quit (cold turkey or taper off)?

cold turkey

How long into your usage did you notice the onset of side effects?

5 years

What side effects did you experience that have yet to resolve since discontinuation?

checked below

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
[ ] Loss of Libido / Sex Drive
[ X] Erectile Dysfunction
[ X] Complete Impotence
[ X] Loss of Morning Erections
[ X] Loss of Spontaneous Erections
[ X] Loss of Nocturnal Erections
[X ] Watery Ejaculate
[X ] Reduced Ejaculate
[X ] Inability or Difficulty to Ejaculate / Orgasm
[ X] Reduced Sperm Count / Motility

Mental
[ ] Emotional Blunting / Emotionally Flat
[X ] Difficulty Focusing / Concentrating
[ ] Confusion
[X ] Memory Loss / Forgetfulness
[ X] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ X] Lack of Motivation / Feeling Passive / Complacency
[X ] Extreme Anxiety / Panic Attacks
[X ] Severe Depression / Melancholy
[ X] Suicidal Thoughts

Physical
[X ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ X] Testicular Shrinkage / Loss of Fullness
[ X] Genital numbness / sensitivity decrease
[ ] Weight Gain
[? ] Gynecomastia (male breasts)
[ ?] Muscle Wastage
[X ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ X] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[ ] Increased hair loss
[ ] Frequent urination
[X ] Lowered body temperature

[ X] Numb body skin
[ X] Burning body skin

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

none this far

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?

Anything not listed in the above questions you’d like to share about your experience?

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

I was on finasteride for 5 years, enduring slight ED, I decided to take some time off, after 3 weeks I’ve restarted using. Felt hypersexual for a month, was highly sexually active. Then brainfog and anxiety came. I started a new relationship with restarting the finasteride, I was highly sexually active and also was very anxious due to some relationship conflicts.

After 2 months had a massive panic attack, lasted 3 days. Endured worsening ED and testicular pain so decided to quit. 2 weeks after quitting, after being highly physically active, I crashed massively with whole body pain and aches, I was burning. I was at the ER twice, the second time the psychiatrist there decided to hospitalize me after he was under the impression I was in a psychotic episode and suicidal. I was given a single anti-psychotic pill serquel and was laid off couple of days later.

In the following month and a half I developed complete sexual dysfunction with complete numbness and coldness. My body skin became numb and I get burns. The tinnitus is unbearable and I am very sensitive to sound. I used to squat 130kg, now I barely walk. My girlfriend and family is devasted. My father is a psychariatrist and he is hellbound to treat me with further anti-psychotics.

I am coming from a high economic class here in Israel and I am off work, and probably can be indefinitely if so I choose, I’ve already made myself a lot of money working in tech the past years. I plan a suicide soon and I would like someone to talk me out of it.

Some of my best friends are dying up there in Lebanon, and I wouldn’t mind joining them at this point.

If something can be learned in my case I think that being highly sexually active and under stress makes some severe PFS cases.

Farewell.

1 Like

Hey man, just to make sure, how long ago did this big crash start?

For now the most important thing is to try and relax and to not catastrophize, it makes every symptom worse than it is. Obviously stop using any anti androgen if you do and do not take any SSRI/SNRI, these can make you much worse. I’d suggest not trying to use any sort of drug to try and treat it.

2 Likes

Sorry to hear this man. Going on/off fin tends to drop the PFS hammer down hard. That doesn’t mean you should give up. Things could get worse initially and then ease up before you reach a baseline. I’d stay away from all meds/supps from here on out and see where you sit after being off a year. It’s going to be a tough year but keep pushing forward no matter what. Research is underway.

1 Like

Sorry to hear. I have been suffering for a long time, around 14 years. I have improved a little bit but could not get back what I was. I have accepted this as part of my life. I tell myself at least we are alive.

1 Like