New Member - seeking insight

Hello!


  1. Where are you from (country)? United States

  2. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?) Searching my sexual dysfunction symptoms

  3. What is your current age, height, weight? Age: 21, Height: 5’7", Weight: 135lbs

  4. Do you excercise regularly? If so, what type of excercise? I run/use the elliptical 2-3 times a week, with some weight machines 1-2 times a week

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)? I eat mostly healthy low-fat foods, but I wouldn’t describe my diet as specifically healthy or totally organic.

  6. Why did you take Finasteride (hair loss, BPH, other)? Hairloss

  7. For how long did you take Finasteride (weeks/months/years)? Approximately 8 months

  8. How old were you, and WHEN (date) did you start Finasteride? Started Finasteride at age 20

  9. How old were you when you quit, and WHEN (date) did you quit? Quit Finasteride at age 21

  10. How did you quit (cold turkey or taper off)? Cold turkey

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic? Started with Propecia, switched to generic Finasteride

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? I think 1mg per day

  13. How long into your use of Finasteride did you notice the onset of side effects? The side effects appeared slowly, maybe 3-4 months into taking the drug

  14. What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
[ x] Loss of Libido / Sex Drive
[ ] Erectile Dysfunction
[ ] Complete Impotence
[ x] Loss of Morning Erections
[ x] Loss of Spontaneous Erections
[ ] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[ ] Emotional Blunting / Emotionally Flat
[ x] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfullness
[x ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[x ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts

Physical
[x ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ x] Testicular Shrinkage / Loss of Fullness
[x ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

  1. What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? I haven’t taken anything. I have started taking a multivitamin that has zinc in it recently.

  2. If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)? I have had bloodtests but have not looked at my hormone levels

  3. Anything not listed in the above questions you’d like to share about your experience with Finasteride?

  4. Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

I began to take Finasteride April 2013 for hair loss. While taking the drug, I noticed a steady decrease in my libido and loss of morning erections. Yet, despite this lessening I was still functioning fine. I was still moderately horny - simply down from my extremely high libido I had before. I also noticed slight weight gain. Seeing these symptoms, I did some research about Finasteride and read about the potential for persisting side effects, so in December 2014, I quit the drug cold turkey.

After quitting, my libido steadily rose back up - never to the level it once was, but I was satisfied with my status. It seemed that all the symptoms I had experienced on the drug were slowly resolving themselves.

Now, 2 months ago (or 6 months after quitting Finasteride), in early July, my penis suddenly changed. The foreskin was swollen by the glans, making it appear slightly deformed, and I had a hardened cord running along the shaft. It also was in a hard-flaccid state. I went to a urologist and he diagnosed this as a penile vein thrombosis. Since that diagnosis, the thrombosed vein has diminished (though definitely hasn’t completely healed) and the oedema (swelling) has mostly disappeared, but my penis now has a rubbery texture and my genitals lack sensation - only the spot where the head and the foreskin meet (I am partially circumcised) is sensitive.

These sexual symptoms seem to align with many post-finasteride symptoms, yet I am questioning if I am experiencing post-Finasteride syndrome because my current sexual symptoms 1) do not match the symptoms I experienced while taking the drug, and 2) appeared nearly 6 months after quitting the drug. I would really appreciate any insight others may have.

The reiterate, my current symptoms are:
Rubbery, hard-flaccid penis, feels as if my penis is never “relaxed”
Lack of genital sensation - testicles, foreskin, and head are all either completely numb or vary in slight sensitivity
Anxiety (which might be brought on my thinking about my sexual dysfunction)