New member - PFS nightmare story

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)? US

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?) Google search under PFS

What is your current age, height, weight? 70, 5’ 6.5", 200 lbs

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)? Dutasteride + saw palmetto

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? 0.5 mg/day

What condition was being treated with the drug? BPH

For how long did you take the drug (weeks/months/years)? several years

How old were you, and WHEN (date) did you start the drug? Don’t remember

How old were you when you quit, and WHEN (date) did you quit? 69.5, around Sept 20, 2020.

How did you quit (cold turkey or taper off)? cold turkey

How long into your usage did you notice the onset of side effects? Don’t remember

What side effects did you experience that have yet to resolve since discontinuation? Ejaculatory dysfunction; & dramatically reduced libido

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
[x] Loss of Libido / Sex Drive
[ ] Erectile Dysfunction
[ ] Complete Impotence
[ ] Loss of Morning Erections
[ ] Loss of Spontaneous Erections
[ ] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ ] Reduced Ejaculate
[x] Inability or Difficulty to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[x] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[x] Memory Loss / Forgetfulness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[x] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[x] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? Sexual intercourse with my partner has become increasingly unsuccessful over the past year; however I try to masturbate about once every day.

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?

Anything not listed in the above questions you’d like to share about your experience?

I am still able to masturbate, although it is significantly more difficult now. Curiously, I have not experienced ED. My dysfunction is ejaculatory, not erectile. Arousal to erection still occurs, although far less frequently. Ejaculation during intercourse is now extremely rare. I fear the condition is permanent.

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

I’m very angry at my doctor for prescribing Dutasteride in the first place. My symptoms of BPH were easily manageable without the drug, and they never improved while on the drug. I’m also very angry at myself for not having researched potential side effects before taking the drug. Learning about PFS has been a gargantuan nightmare.

Hi @nsalmon

Welcome, and I’m sorry to hear you are not doing well. Please give it some time to see how things improve, as many patients report some natural improvement over time and I notice you’re still in the first year off the drug. While this problems will most likely persist, you should notice some improvement soon.

There are a few older members who took the drug for BPH I believe - @Exsexgod being one, so you’re not alone and this forum is here to help and support.

If you’d ever like to connect for a phone call please let me know.

Dear @nsalmon and @Sugarhouse
There are @Akiyah and @JimWildman and two in a FB Group who got prescription of Finasterid against benign prostatic hyperplasia. I have got fully blown PFS at the age of 59. @Akiyah with 59 and @JimWildman fully blown PFS with 63 yo.

So I think every year enjoyed without PFS is one gift. So with 70 you could enjoy 11 years without PFS than me, Akita and Jim.
But than I think about all the young guys here many of them getting impotent and developing muscle atrophy, many with brainfog and afraid of future in such young years, that we can pray to god for all the years we spent without this horrible disease.
That it is still prescribed, without warnings is a scandal. My urologist gave to package s with me just to try, after I told him that I’m in a sexuall aktiv relationship.

You’re right. I’m grateful for the years I had, & I’m not giving up hope for a brighter future.

Thank you for your supportive message & especially for your encouraging words. Not to worry, I won’t consider anything as drastic as suicide over this crap (& I’m an old guy anyway). My libido–which was legion & legendary as recently as a year and a half ago–seems to be on a permanent hiatus. Yet I still immensely enjoy the sight of a short summer dress flying up in the wind, so I’m not giving up hope. Nor should anyone else in this group. As long as you miss being able to perform, there’s hope. Life is still rich.

2 Likes

Said it very well. As mentioned the offer is always there if you want to connect outside the forum.

Take care.