New Member - my story

COPY AND PASTE THE FOLLOWING INTO YOUR OWN POST, then answer the questions.

  1. Where are you from (country)?
    USA

  2. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
    Google search “post propecia syndrome”

  3. What is your current age, height, weight?
    age: 32
    height: 5’10’’
    weight: 140 lb

  4. Do you excercise regularly? If so, what type of excercise?
    Yes, P90X, wieghts, running.

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?
    Pretty healthy diet. veggies, meat, fruit. low carbs and low suger. no fast food.

  6. Why did you take Finasteride (hair loss, BPH, other)?
    Hair loss

  7. For how long did you take Finasteride (weeks/months/years)?
    11 years.

  8. How old were you, and WHEN (date) did you start Finasteride?
    21

  9. How old were you when you quit, and WHEN (date) did you quit?
    32

  10. How did you quit (cold turkey or taper off)?
    cold turkey

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?
    propecia

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
    1 mg/day

  13. How long into your use of Finasteride did you notice the onset of side effects?
    within the first few weeks.

  14. What side effects did you experience while on the drug that have yet to resolve since discontinuation?
    ED, low labido
    Put an X beside all that apply:

Sexual
[x] Loss of Libido / Sex Drive
[x] Erectile Dysfunction
[ ] Complete Impotence
[x] Loss of Morning Erections
[x] Loss of Spontaneous Erections
[x] Loss of Nocturnal Erections
[x] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[ ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfullness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[x] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[x] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[x] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

  1. What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
    just exercise and healthy diet at the moment.

  2. If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?
    -need to get these tests.

  3. Anything not listed in the above questions you’d like to share about your experience with Finasteride?

  4. Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

So here is my story. I started taking porpecia when I was 22 for hair loss. It worked great for the hair loss but a few weeks after starting it I noticed some ED. Not getting hard as fast as I use too, not getting as hard as I use to, and not staying hard as long as I use too. But it was only a small change and seeing I had a long term girlfriend at the time, it wasn’t much of an issue. we continued to have a healthy sex life. Over the next 10 years on propecia my ED issues pretty much stayed the same. I masterbated regularly, but spontanious arousal and morning wood went away while on the drug. I also have anxiety issues which I know contribute to my ED, just feeling anxiety in sexual situations which totally overrides getting turned on. But I’ve managed this too. I’ve also been in many situations with girls where I have no problem performing.

4 years ago I did the master cleanse and stopped taking the propecia. After about 10 - 14 days my ED went away and I felt 100% recovered. after 6 months the hair loss returned so I went back on the propecia and the sexual side effect came back, but again they were manageable.

A year ago I went off the propecia again and about 10 - 14 days after going off it the sexual side effects went away and I was back to 100%. After a month I went back on the propecia for the hair loss. In the past 6 months I’ve had sexual relations with 2 different girls and had no ED problems, I even had several spontaneous erections while hanging out with one of them. I’ve also steadily masterbated 1-3 times a day for the past year with not issues. (sorry if it TMI)

Now, its a year later and I’ve decided to go off the propecia permanently and its been almost a month and the sexual side effect still persist. In the past week I did get morning wood 3 different times which didn’t happen while on the drug. But I don’t feel the surge in sexual drive I felt the previous 2 times I went off the drug. I’m hoping it’ll work itself out, but reading through these post it seem a little more complicated then that.

I joined this forum for information, guidance, and support.

are you only 1 month with side effects?

morning wood is a good sign, i think you dont have PFS.

dont use procecia anymore, take a time to see improvements, maybe you will recovery completely and you dont need to worry.