Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.
Where are you from (country)? USA
How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
What is your current age, height, weight? 25, 6’, 200lb
What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)? Minoxidil
What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? Full dropper topical everyday for 1 year.
What condition was being treated with the drug? Receding hairline
For how long did you take the drug (weeks/months/years)? 1 year and a few months
How old were you, and WHEN (date) did you start the drug? 16
How old were you when you quit, and WHEN (date) did you quit? 17
How did you quit (cold turkey or taper off)? Cold turkey
How long into your usage did you notice the onset of side effects? 6 months in and noticed depression but thought it was temporary. Full side effects were noticeable 6 months after including severe sexual dysfunction and numbness, dry skin, loss of body hair, zero libido, insomnia, genital shrinkage, cold feeling.
What side effects did you experience that have yet to resolve since discontinuation? All side effects are still unresolved.
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.
[ x] Loss of Libido / Sex Drive
[x ] Erectile Dysfunction
[ x] Loss of Morning Erections
[ x Loss of Spontaneous Erections
[x ] Loss of Nocturnal Erections
[x ] Watery Ejaculate
[ x] Reduced Ejaculate
[ x] Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility
[x ] Emotional Blunting / Emotionally Flat
[x ] Difficulty Focusing / Concentrating
[ x] Confusion
[x ] Memory Loss / Forgetfulness
[ x] Stumbling over Words / Losing Train of Thought
Slurring of Speech
[x ] Lack of Motivation / Feeling Passive / Complacency
[x ] Extreme Anxiety / Panic Attacks
[ x] Severe Depression / Melancholy
[ x] Suicidal Thoughts
[x ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
[x ] Testicular Shrinkage / Loss of Fullness
[x ] Genital numbness / sensitivity decrease
[x ] Weight Gain
Gynecomastia (male breasts)
[x ] Muscle Wastage
[x ] Muscle Weakness
[ x] Dry / Dark Circles under eyes
[ x] Persistent Fatigue / Exhaustion
[x ] Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Increased hair loss
[x ] Frequent urination
[x ] Lowered body temperature
Other (please explain)
What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? Currently taking many supplements and 25 mcg levothyroxine
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?
Anything not listed in the above questions you’d like to share about your experience?
Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
I have had this since 2012 when I was going into senior year of high school. My story is much similar to everyone here. I was in extremely good shape and healthy with no history of depression before this. I was completely destroyed when my worst fears were realized. Doctors told me this was impossible and it was in my head. I never told anyone else except for parents about this. Since I used minoxidil and not finasteride I was told that it was not possible. I knew instantly what this was as there is nothing else in medicine that has symptoms like these. Living with this on my own was unbearable. I saw many doctors and everyone of them dismissed what I was saying. Finally after 7 years I went to San Diego to see Dr. Goldstein and he ran the tests and confirmed that my symptoms are equivalent to post finasteride syndrome. I haven’t seen many members with minoxidil stories but I also thought it was safe. If I knew what would happen I would have never touched it. Anyways, that’s the brief story and anything positive that I find I will share it.