New member, here is my story

[joetz]

My life is far from over. There are times where I think about what my life could have been but I have still managed to find some degree of satisfaction with my life. I have great family and some amazing people in my life. And time does heal the brain to some degree. I used to experience insomnia every single night and now it only happens once a week at most.

At this point I have been sick for 2/3rds of my life so most people around me have only known the person I am now. And I have come to accept the new me as myself if that makes any sense. I am still looking forward to a cure but I don’t see my the rest of my life as a jail sentence

[aki]

Thank you for sharing your situation. I find encouragement in the fact that despite bearing such a dreadful curse, you have continued living your life without succumbing to it and have achieved certain successes. You are great!

By the way, I’m in my 25th month with PFS and suffer from severe insomnia, sleeping only 0 to 3 hours daily for over two years now. There’s still no improvement. So I’m particularly interested in the progression of your insomnia.

I understand your daily insomnia has now improved to about once a week. If it’s okay with you, I’d like to ask about your insomnia journey:

・How much sleep did you get during your insomnia?
・Around what year did your insomnia start improving, and how many years did it take to reach your current state?

I’d be grateful if you could share what you remember.

[LifeSucksBalls]

fuck all this “bearing suffering”, “accepting your new life” bullshit. i have no interest in living as a shell of my former self.

i just gotta find the courage to end this shit somehow, very much not easy…