I just signed up for this forum and look forward to sharing what I know with everyone here to find a solution to our problems.
I first took propecia in my early 20s when i started to lose my hair. The doctor who prescribed it for me told me that only 2% of men have problems and those two percent went back to normal when they quit the drug. Thinking I had nothing to lose, I filled the prescription right away and began taking the medication.
Almost immediately I knew something was wrong. I lost interest in sex, no longer noticed attractive women and found it very difficult to get aroused. I stayed on the drug anyway because I really believed I would return to normal if I stopped.
Eventually the symptoms became too much to deal with after about a year and I stopped taking the drug for 2 years. In those 2 years I never recovered and I began to think it might be because of other things. I thought there was no way propecia could be causing the continued sexual dysfunction because I was no longer taking it. I spent years trying to get off drugs I was taking for seizures, hoping that would work and, having mistakenly ruled out the propecia as a problem I began taking it again until this summer.
Now I am off all medications and am continuing to suffer side effects and I am even learning about some new ones. So far here are all the things wrong:
I have very flat moods. I’m not depressed, not happy, not sad, just stuck in the middle
I am able to have orgasms but they are pleasure-free. I believe the term for this is sexual anhedonia
I have no dreams when I sleep
There is a complete absence of sexual fantasies for me
It is hard to feel or express love
I have a hard time laughing. When I am at comedy clubs I am the only one not laughing. I get the jokes, they just don’t strike me as being funny.
A lot of hobbies and things that used to be interesting to me are no longer interesting.
I am now 33 years old and have spent the best years of my life crippled by this drug. I don’t know if there are many people who have been crushed for a decade who have dug themselves out of this mess. I want to be able to feel alive again, I don’t even care about my hair anymore.