New member - can you help? Any advice. so worried

  1. Where are you from (country)?

USA

  1. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)

I always knew about it
2) What is your current age, height, weight?
27 5’11 , 180
3) Do you excercise regularly? If so, what type of excercise?
yes everything but cannot put on muscle , no longer feel athletic
4) What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?
vegetarian
5) Why did you take Finasteride (hair loss, BPH, other)?
propeica then avodart for hair loss
6) For how long did you take Finasteride (weeks/months/years)?

about 7 years 3 propeica 4 avodart
7) How old were you, and WHEN (date) did you start Finasteride?
19
8) How old were you when you quit, and WHEN (date) did you quit?
26
9) How did you quit (cold turkey or taper off)?
cold turkey
10) What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?
avodart
11) What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
.5 a day
12) How long into your use of Finasteride did you notice the onset of side effects?
they were not that bad on propeica but i think avodart almost killed me
13) What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
[ x] Loss of Libido / Sex Drive
[ x] Erectile Dysfunction
[ ] Complete Impotence
[x ] Loss of Morning Erections
[x ] Loss of Spontaneous Erections
[x ] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[x ] Emotional Blunting / Emotionally Flat
[x ] Difficulty Focusing / Concentrating
[ ] Confusion
[ x] Memory Loss / Forgetfullness
[x ] Stumbling over Words / Losing Train of Thought
[x ] Slurring of Speech
[ x] Lack of Motivation / Feeling Passive / Complacency
[ x] Extreme Anxiety / Panic Attacks
[ x] Depression / Melancholy

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[x ] Gynecomastia (male breasts)
[x ] Muscle Wastage
[x ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[x ] Persistent Fatigue / Exhaustion
[x ] Stomach Pains / Digestion Problems
[x ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

no appetite
14) What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

nothing too afraid i have been recommended cialis once a day and clomid
15) If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?
yes i dont have them but everything was “normal”
16) Anything not listed in the above questions you’d like to share about your experience with Finasteride?
for the love of god, get this off the market
17) Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

quit 1.5 years ago. side effects have not resolved but haven’t gotten worse

i read this forum but there is alot to read through.

i have consults with many doctors most are no help.

ive been sugested clomid and cialis once a day. i might try cialis once a day.

BUT the reason why I am here is because will anything work? How about quitting masterbation (I’m going to try to quit)? I try to read the forum but I get so depressed and there is alot. can someone give me an update on what people have been trying and if anything works? how about clomid should I try that? I will let you know how things go with cialis once a day.

Hi
The same happened to me I think I may of had a lucky escape with finesteride but when I went on avodart that knocked me for Shit sexually. You need to see a good Dr I saw Dr Alan Jacobs in New York. And get a whole load of blood tests. I’ve been of for 2 years and apart from slight fluctuations depending how much testosterone I take I’m about the same. Though just recently I’ve got sore and lost sensitivity . Not sure if I got some counterfeit arimidex as that gives me sensitivity. That s from someone local not a Dr. Just hope they find out why this crap we took is doing this to us and find a remedy. Take care

Get all the exams suggested in the home of the website. You might go with the short list, but I would advise to add progesterone to this. Go to a university doc specialized in endocinology. Then understand if he is seeing pfs patients normally. If not leave him and search another that knows there is a neurological problem related to allopregnanolone. If you can’t fin any go for the pfs doctors or if you can, go directly to see one of them.