Ncsugrad's PFS diary

I’ve tried histidine with no progress.

Ah ok. I’ll keep expectations low then for that one

Who is ready for more sex updates? Haha.

Thursday was a marathon but worked. Friday wasn’t a marathon, and worked

The weird part about Friday is sensitivity was awesome in the beginning. Damn near normal actually. But as usual it went downhill after that and made things more difficult. Surprised it didn’t turn into a marathon but I’m glad it didn’t somehow.

I’m not sure what it is about fridays but I seem to always be good to go then, lol

I’ve decided to stop taking any supplements/prohormones for the next few weeks so I can have TEI do a hair analysis. Others have had luck long term by going through this process several times and living by their recommendations for vitamins/diet.

I’ve also found a couple of new ideas on what causes this disease that I am interested in. Some involve 5b instead of 5ar and others are immune system/inflammatory response related. I have no idea which is correct but hopefully it gets figured out soon

I’m still hopeful the Baylor study will shed some light on it for us.

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Ty for the sex updates. I’d be very interested to hear how you feel after a while off supps too - I thought it’d be dreadful but a couple days in I’m actually a little bit better for it.

That will be interesting. I’ve had that happen before where I felt better after stopping than I did while taking them. Not sure if it was some kind of rebound or if that’s truly how I felt before taking them.

Saturday was no finish x2
Sunday was no finish x1

Didn’t try long either day, and was also very hungover Sunday, though sometimes that seems to help things?

I haven’t updated my log / accidental “sex diary” in a bit… so let me go back and try to remember the last week or so:

Monday was like 50% numb but it didn’t seem to get worse as things went on… things ended normally. I was very worried since I had literally tried 3x between Saturday/Sunday with no successes. But I didn’t try very hard either, didn’t want to destroy the gal.

Thursday I don’t really remember but I think it was about the same. I know I was able to finish at least without a marathon

So, what have I been doing lately to try to help with PFS? Not a lot. I took a high dose iodine supplement for a little over a week, so I should be good on iodine now. I’ve been trying a low dose T3/T4 supplement but I haven’t decided whether it helps or not yet. My body temperature was getting down under 97* in the mornings and peak would maybe get to 97.4, so that’s why I started looking at Thyroid stuff.

It sure would be nice for my hands and feet not to be freezing all the time. I’m considering bumping the dose up slightly on the T3/T4 stuff to see what happens.

I am also taking Betaine and I’ve tried Histadine a few times–a link has been found between levels of histadine and premature ejaculation and delayed ejaculation. High histadine = PE, low histadine = DE, so I figured it was worth a shot to get more towards the high end. I may be the only guy on the planet that would love a few rounds of PE right now, haha

Betaine has helped with sensitivity to some… so also figured it was worth a shot. Nothing negative to report, but nothing hugely positive either thus far.

I doubled my choline dose up to 700mg per day based on what some other people were taking

Last night was strange. Kind of like halfway between pfs “normal” and those few days I had where Tribulus worked. So, still a plus in my book

I’m going to continue with choline for now and see what happens

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Sup B

Still taking it, 700mg/day

Had some weird difficulty getting it up for a min on wednesday but an hour later it was viagra level hard haha, dunno if it’s related to choline or not.

Didn’t have any issues sensitivity wise. Not sure if it’s related to choline or just coincidence since I’ve been trying to keep it to every other day and not every day.

Going to keep taking it for now.

To be clear, I’m still not at pre pfs levels, just didn’t get super duper numb like I do sometimes

I didn’t realize it had been 3 weeks since I updated… apparently time flies sometimes

I’m pretty well stable, I guess? I’m back to taking nothing for a bit. I had taken Choline and Histidine on and off but never saw any results at all for those.

Tried Clomid for a week or so but it seemed to make me go between having higher than normal libido (which wasn’t so bad) and being super depressed and/or mad at the smallest things (which obviously sucked). That isn’t like me at all.

So… I’m back to taking nothing for a bit.

I can only remember back a week or so as far as sex history goes but I’ll try to post what I can remember, just so I can look back at it later and try to remember if I’m getting better or worse

Friday (over a week ago) worked fine, I don’t remember anything crazy
Saturday I couldn’t finish (twice)–one time was in the early morning and again late morning, so that doesn’t help, but yeah, no go x2
Sunday couldn’t finish. Morning try, but I was very hungover (though that usually seems to help)
Monday was normal
Friday was normal
Sunday was no in the morning but was OK at night–not easy but wasn’t full blown marathon

And that’s about it. The significant other has a lot of travel coming up so things will probably be pretty spaced out the next few weeks.

I’m considering going to a doc and getting some actual insurance sponsored blood tests (and whatever else they want to do, if anything) done after I go a few weeks without taking anything. Not sure they can actually do anything to help for obvious reasons, but some documented history might be beneficial if PFS is ever documented as a real disease. Perhaps there will even be a lawsuit at some point.

I’ve been trying to remember more and more of my sexual history lately, going back years before PFS through the beginning of taking fin to now. It seems almost like I got super super sensitive and had borderline PE issues for the last year or so I was taking Dut. I remember for sure that my semen volume was very low when I first started taking Fin and it slowly increased over the years I took it/Dut. Same with crazy high sensitivity/PE. I more and more sensitive/quicker as the years went on until this all started early 2018. Makes me wonder if my body was adapting to the lack of DHT somehow and becoming super sensitive to it. Who knows.

Anyways. That’s all I’ve got right now.

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Well taking nothing didn’t last long. Tried some R Andro for the last 2 days, numbness is the worst it’s been in a long time. Going to continue for a few more days and hope for some rebound improvements.

Feeling decent the last 3 days. I’ve been taking 1/2 a Tribulus daily and 1 drop of T3/T4 thyroid supplement every other day recently.

Sex last night was good, no issues. I wanted round 2 but she was tired/sore so didn’t get to try

We shall see tonight how 2 days in a row works out

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Today marks 3 days of successful, mostly normal sex in a row, with no marathon sessions to get the job done or super numbness. Only no-go was this morning, but mornings never work so I’m not even counting that anymore. Still not 100% full sensation but not far from it. So, I’m feeling pretty good right now. I’ve been cold all day but I think that’s something to do with the thyroid supplement.

I am still taking 1/2 a Medi Herb Tribulus per day. I went up to a second 1/2 this afternoon and felt a little more numb this evening (but not terribly), so I’m going back to 1/2 tab for a few more days then going to nothing for a few days to see what happens. I may just need some very very low dose cycles before moving up to higher dose ones… hopefully anyways!

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Well that’s what I get for getting too optimistic I guess. No sex drive today, very difficulty w/erections, etc. No way I was getting done.

I should learn to be happy with 3 good days in a row, but every time I get that is also reminds me a little bit of how I used to be which can be pretty frustrating

Oh well. Taking a few days off…

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I think I’m going to do a week or so of no Tribulus then do another low low dose cycle of 1/2 to 1 pill per day.

Things worked well yesterday and I feel good today too. Coincidence? Who knows. But Tribulus is all I’ve had lately so maybe it’s that. Worth a shot anyways

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Here are some of my blood test results. Insanely high shbg

Estradiol is 13.1. Low end of normal.
Total test 862
Free test 6.3. Low.
Shbg 151. High. Normal range is 16-56
TSH 2.64. “Normal” but higher than I’d like

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Think you’re very similar to me in that case. SHBG especially. Did you look at DHT? The test for it is proper expensive here (UK).

I didn’t do DHT, not sure what I was thinking on that one.

That’s the second highest shbg I’ve been able to find of anyone on the Internet, lol. Hopefully I’m not dying of liver disease or something.

I’d say you definitely need to do something about that shbg. You effectively have low testosterone. At least maybe go low carb and eliminate caffeine, test it again in a couple weeks.

Low carb supposedly makes it worse from what I’ve read anyways. I’m thinking about low’ish dose testosterone replacement. 80-100mg/week to see how I do for a few weeks.

In the back of my mind I’m hoping that’s the issue and not “PFS” after all. That would be awesome, but I don’t really know how it’ll go.

I’m about to find out though