my story


0) Where are you from (country)?

Holland

  1. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
    Google

  2. What is your current age, height, weight?
    24, 188, 76

  3. Do you excercise regularly? If so, what type of excercise?
    No, i used to do weightlifting.

  4. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?
    organic healthy.

  5. Why did you take Finasteride (hair loss, BPH, other)?
    Hair loss

  6. For how long did you take Finasteride (weeks/months/years)?
    2 Years

  7. How old were you, and WHEN (date) did you start Finasteride?
    18

  8. How old were you when you quit, and WHEN (date) did you quit?
    20

  9. How did you quit (cold turkey or taper off)?
    Cold turkey

  10. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?
    Propecia

  11. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
    1mg/ day

  12. How long into your use of Finasteride did you notice the onset of side effects?
    after a year

  13. What side effects did you experience while on the drug that have yet to resolve since discontinuation?
    All of m

Put an X beside all that apply:

Sexual
[X ] Loss of Libido / Sex Drive
[X ] Erectile Dysfunction
[ ] Complete Impotence
[X ] Loss of Morning Erections
[X ] Loss of Spontaneous Erections
[X] Loss of Nocturnal Erections
[X ] Watery Ejaculate
[X ] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[X ] Reduced Sperm Count / Motility

Mental
[X ] Emotional Blunting / Emotionally Flat
[X] Difficulty Focusing / Concentrating
[X ] Confusion
[X ] Memory Loss / Forgetfullness
[X ] Stumbling over Words / Losing Train of Thought
[X ] Slurring of Speech
[X ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[X ] Severe Depression / Melancholy
[X ] Suicidal Thoughts

Physical
[X ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[X ] Testicular Shrinkage / Loss of Fullness
[X ] Genital numbness / sensitivity decrease
[X ] Weight Gain
[ ] Gynecomastia (male breasts)
[X ] Muscle Wastage
[X ] Muscle Weakness
[X ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[X ] Persistent Fatigue / Exhaustion
[X ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[X ] Vision - Acuity Decrease / Blurriness
[X ] Increased hair loss
[X ] Frequent urination
[X ] Lowered body temperature

[ ] Other (please explain)
Raynaud’s syndrome
Problems with coordination and balance disorder

  1. What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

  2. If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)? Verry soon

  3. Anything not listed in the above questions you’d like to share about your experience with Finasteride?
    Nope

  4. Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

Hello this is my story
Well,It started when i was 18 and I became bolder and bolder,
So I went to my doctor and he send me to a dermatologist ,who recommend Propecia.
He wanted to send me to his private clinic for using dutasteride because I had a type 5 baldness already,
But I never went to this clinic, because i couldn’t afford it.
But he gave me Propecia
I discovered some of the side effects of the manual but didn’t bother me
because i was willing to give some things up, to get my hair back and thought it would resolve after quitting the drug.

Bodybuilding was a big part of my life
I used to excerise but i gained some fat around the stomach after finasteride, on second thoughts so i purchased a
fatburner on caffeine
Around that time i had girlfriend but it didnt work out the right way
Because I had some problems with keeping an erection ,so I blamed the medicines for that.
I told her i would quit and it will be fine, but it wasn’t so i lost her and lost myself.
I felt my sleep was slipping away.
But I kept on training because everyone told me,the harder you train, the better you will sleep
So I kept on training and using caffeine.
I didn’t think Procepia was the cause of all my problems.
Because I had my ex girlfriend on my mind all the time and thought,that was the reason i was so stressed.
Around 10 october 2011 i remember i went to some friends to drink a beer and skip a whole night of sleep
so i would be extra tired and would catch a good sleep next night
But that wasn’t the case
From that day I crashed hard ,but kept on training even after 2-3 hours sleep because it was the only thing i had
And i wanted to make my ex-girlfriend ,wants me back ,but in vain
Months went by with no libido and low sex drive and a poor sleep but i didnt care
I thought things would be allright till around may 2011
I thought i developed overtraining syndrome.
So i went to a sport doctor and he told me to keep on training and my problems where psychical
So i picked up training 1 month after quitting because i didn’t had any improvement in my sleep
But when i started and noticed my stool went bad again.
I never noticed there was something wrong with it before ,but despite of all the pain and suffering i kept on training
because i couldn’t live without it.
From then it went downhill very fast
I lived in a complete state of nothingness just eating 8 times a day and train.
I lost a lot of people around me and i didn’t feel any emotions
But i didn’t realize it at that moment.
I went to doctors and an even alternative doctors. they recommend natural supplements like zinc, magnesium etc
but i didnt notice any difference from it.
I 've been in a sleep-center and my mom had sleep problems too
We thought it was a hereditary.
After all despite, i still managed to put on muscles.
I was 100 kg muscle and around 13-14% fat but never enjoyed it because i lived in a rush only sleep eat and train
I even took anabolics steroids (winstrol) while i was already in a horror state of mind
I still didn’t know where all the problems were coming from, doctors didn’t take me serious.

I had a mental illness payment already so they put it all on my PDD nos disorder, even im diagnosed with that after taking propecia.
so its not relevant ,at all i knew it was physical but i had no one to believe me only my parents did
When days went by, i felt i couldn’t do this anymore so dicided to stop training.
From 1 january 2013 I took a few weeks to see my stool improve a bit but not really good and went to doctors
to check for parasites and allergies and such ,for the second time ,but no good results.
They gave me antibiotics but never improved anything, i knew it was bigger than that and went on searching and searching
had some slight improvements
Again thought it was overtraining syndrome, but after few months with too little improvement and losing my muscle mass
and when i tried to exercise one time ,i still had the same bad reactions from stool, frequent urine and even poorer sleep
I googled exercise- intolerance and read a lot of common things on ME/CVS forums
But libido loss and such weren’t the biggest problem but i never noticed i had them because i thought i just had no intrest
because i was to busy training and living in a rush.
But after a few months i began to feel deffirences in my perspective on life and able to feel some feels,
music and everything changed from that moment i realised in what mess i’ve lived the last 3 years.

I’ve been to a orthomoleculair doctor and he took blood tests / lyme etc i get the results 8 october so
i’ll post the results later on.
i’ve got less brain fog, stress situations or exercise makes the symptoms worser.
my sleep has improved after months of rest but i still feel like i cant get to the deepest phase of sleep
and i don’t get sleepy. I get around 5-6 hours sleep in a row at the moment.
libido has no improvements at all.
Hope it will get better soon, ive not planned any therapy yet i live
as healthy as possible now and hope time will show improvement.

help and suggestions are welcome.

i’ll keep you informed

JB