My story-Accutane related,never on fin

I will start by saying, my story is not fin related at all. i started off posting my story in the general section, and was asked to post up my story. i am hoping to find some kind of understanding though i am haveing the exact same side effects as most of you.

Where are you from (country)? Israel

  1. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
    Google search -was looking to start taking for propecia for my hair loss problem, and ran up in to this site. might as say , propecia is being advertised widly and aggresivly around my country

  2. What is your current age, height, weight?
    24, 6’1, 190

  3. Do you excercise regularly? If so, what type of excercise?
    Gym, weight training.

  4. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?
    Eating a regular 3 meal course round the day, noothing special, not really minding my diet. only after i go to the gym i am actually thinking about what to eat

  5. Why did you take Finasteride (hair loss, BPH, other)?

  6. For how long did you take Finasteride (weeks/months/years)?
    Took Roacuttane for 6 months

  7. How old were you, and WHEN (date) did you start Finasteride?
    16.5

  8. How old were you when you quit, and WHEN (date) did you quit?
    17

  9. How did you quit (cold turkey or taper off)?
    Cold Turkey

  10. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?

  11. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?

  12. How long into your use of Finasteride did you notice the onset of side effects?
    I never did realize i am having a problem, only till running into this forum to realize that a healthy 23 year old could have such a problem, never realied it could happen to me in such a young age. Allways looked up to other reasons and options of me being the way i am

  13. What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
[x ] Loss of Libido / Sex Drive
[ x] Erectile Dysfunction
[ ] Complete Impotence
[x] Loss of Morning Erections
[x] Loss of Spontaneous Erections
[ x] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[] Emotional Blunting / Emotionally Flat
[] Difficulty Focusing / Concentrating
[] Confusion
[] Memory Loss / Forgetfullness
[] Stumbling over Words / Losing Train of Thought
[] Slurring of Speech
[x] Lack of Motivation / Feeling Passive / Complacency
[] Extreme Anxiety / Panic Attacks
[x] Depression / Melancholy

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[] Muscle Wastage
[] Muscle Weakness
[] Joint Pain
[] Dry / Dark Circles under eyes
*must say again, all of the above. Accutane related. and are all persisrant

Misc
[] Prostate pain
[] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ ] Frequent urination
[] Lowered body temperature

[ ] Other (please explain)

  1. What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
    none. never talked about it till now

  2. If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?

  3. Anything not listed in the above questions you’d like to share about your experience with Finasteride?

  4. Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

the thing that hurt the most, in my opinion, is the memory of myself being a young teenager who was constantly thinking of sex for the whole day, being sexually active, and thinking of the last 7 years of living in the dark, trying to escape my problem, trying not to get into any sex talks with me fellow friends, having nearly any sex expiernce due to my problem kills me eevery possible day.I feel like i have zero libido, in my many situations of having sex i allways made an excuse to run off, and not deal with it, allways was nervous of getting into a real relationship just cause the day that ill have to talk to the girl , i know it will scare off 99 percents of the girls, any of you with a girlfriend who is understanding is extremly lucky!!
thats about it, if there is anyone who encounterd the same side effects from this drug, i would love to hear from you.
And for the rest of you, i am here for all of you, having to live with the same side effects, the same feeling, and the exact same thoughts as you, allthough from a diffrent backround. I will be trying to stick around and perticipate in the discusoins .

2 Likes

I just want a clarification from someone who knows: do we know for a fact that Accutane’s mechanism of action involves inhibiting hormone production? Also might as well inquire about any known direct mental effects it may have, like Propecia interfering with neurosteroids?

Goldenw, thanks for your story. Your input is very valuable because it clearly shows us that basically anything that inhibits 5AR can cause these problems.

You wrote:

Does that mean, all side effects under the “Physical” heading apply, including penile damage and gyno?

Yes, Accutane also works by reducing DHT / inhibiting 5AR:

jcem.endojournals.org/cgi/conten … /80/4/1158

ncbi.nlm.nih.gov/pubmed/1827343

We definitely ARE talking about the same problem. For further clarification, read this post:

max001.proboards.com/index.cgi?b … thread=184

Hey @Goldenw, What was your dosage?