Did u have severe muscle dysfunction?
That’s what I was thinking …each time i see abuse against him I’m like , you know what - this is Mels Story not yours. You can’t tell him what his story is supposed to be even if it doesn’t tie in with your experience with PFS. That’s the whole point of a forum , it’s a free place to come and let your voice be heard .
I’m pleased for Mel @anonymous1968 and enjoy reading his posts . Best of luck with your continued progress !
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They should really edit that stupid paragraph on the PFS foundation site.
Congratulation, man. I’m glad you’re doing ok.
It’s a fact that they have mentioned, no need of a edit.
It’s not a fact.
Some people recover.
And the last thing a guy dealing with sides needs, is to be told there’s no way to recover 100% after the 3 months mark.
It’s a lie.
Yeah every sexual symptoms guy says this. Look, pfs is not just sexual ok, pfs has a very severe impact on physical aspects like Muscles and Bones, which seem to never cure even after a decade. U mild sufferers believe that pfs is just sexual dysfunction, u guys don’t know shit. So yeah no need to edit that fact.
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@anon74895881 let’s not forget the physiological warfarre either. Due to the lowered beurosteroids which also link into the physical decline
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This is the only thing you got right.
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Except when it doesn’t… certainly not the case with me and many others. PFS presents itself in many varied ways, what’s true for one person isn’t true for another. That’s what makes it a hard beast to pin down and I think our biggest challenge moving forward will be to find some common mechanism which underpins the vast spectrum of differing symptoms people experience.
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I don’t get what’s the matter with you all naysayers.
You complain about doctors not recognizing this syndrome as real, and yet you bring the same attitude when it come to recovery stories.
All the bullshit you say about “real PFS” and “not real PFS”, is like saying stage 1 cancer is not “real cancer” because there’s someone who has it at stage 4. I’m not saying this attituide is the reason why we don’t have more of those positive stories, but damn it doesn’t help for sure to be labeled as a liar or an hypocondriac just because you got better.
I really don’t understand this mindset. This is a dreadful condition, and you need to make it even worse.
Gosh.
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This "when it doesn’t " people are not the ones who commit suicide. Obviously the symptoms that can force someone to commit suicide must be limelighted, u people have made this entire syndrome revolving around sexual issues, and how “trt and exercise can cure u”. Bs.
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Just move on with ur life instead of saying “i can’t get it up”. There are far more bigger issues people suffering here than this bs.
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Which is not an answer.
I’m not doubting the varying levels of severity of PFS, with the more serious cases have a higher likelihood of suicide. But to say that PFS is ‘x’ which encompasses ALL possible symptoms implies that if one doesn’t exhibit all symptoms one doesn’t have ‘real PFS’.
@anon74895881 With the sexuall symptomes you can live. The Muscle wastage makes you unable to drive a car for a long distance anymore. Than you cannot stand up from the bed anymore. Or does IT Stopp at Baseline after some time?
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That i don’t know sir, i am 14 months off and i am still experiencing severe wastage and muscle weakness, now the joints have started to pain as well. I am only 23.
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My right calve ist atrophic from an old Achilles tendon ruptur
There muscle wastage Starts. But my question! After 14 Months of muscle wastage, are you able to Walk Out of the House / flat to the Supermarket or do you have difficultys? Stopped IT a little Bit in Progress?
That you are only 23 is like a child getting cancer and an other one gives parties with 80. This ist why I don’t belive in any god.
That you are 23 is like a child gets cancer an it’s grandpa getting healthy 99
So I don’t belive in any god.
Are you Able to leave the flat / House to Walk to the Supermarket, or are your muscles to weak after 14 Months.
I feel Like an old man after 2 Months allrady.
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Laying 2 Months depressed in my bed was’nt a good Therapy for my calves. The last days I make a walk through the forest, or just around my Village
None of this is God’s doing we are in this horrendous situation because of uscrupulous system abusing criminals.
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