My horrible experience

me too wtf

It seems like we are in the crash/ worsening camp. I wish it would just end and my condition would stabilize so i knew what to expect. You would think that having recoveries or improvements in the past would mean that over the long term things can only get better but itā€™s proved to be the exact opposite for me. 2 steps forward, 1 step back, 3 steps forward, CRASH! something like that anywayā€¦

I feel a lot better today. I was able to get decent sleep last night. Penis is bigger. Testis a little bigger too. Left testicle a tiny little bit of pain occassionally throughout the morning, but nothing major. Anxiety and depression gone. A little bit foggy, very little. I was able to run a meeting this morning at work so I think Iā€™m stablized now. Hopefully, this is an indication that although crashes can reoccur, your body can recover quickly back to the 60 percent of your old self state. Weā€™ll see how this holds. Now off to the gym to try to regain all the muscle Iā€™ve loss this week, and lose the fat that I gained on my ass and stomach.

I have experienced two great days. I am praying that this sustains itself. This after the most significant crash since the initial. The last two nights Iā€™ve experienced strong nocturnal erections. Two nights ago the nocturnal lasted over an hour. I woke up to it and laid semi awake in sheer happiness as it was rock hard for all that time.

I am hoping that the last huge crash a little over a year and half after the initial was a signal that my body is trying to reset itself. If anyone else has experienced an episode like this Iā€™d appreciate some input.

I have experienced the same, twice now. Period of worsening followed by period of improvement. I would not call my worsening another crash per se, but significant worsening of symptoms. Sleep is a big factor for me. When i have periods of sleeping better, everything starts slotting into place, but then i buckle and sleep bad one night and round and round we goā€¦

This sort of thing keeps happening to me. Letā€™s just hope that it is indeed our bodies trying to get back to normal. Who knows, maybe in 3-4 years time things will balance out.

Keep us updated!

Third day of normalcy. I have had spontaneus erections today and some decent libido. I feel and look a lot more muscular as my upper chest muscles have definitely increased in size. Genitals are bigger. This is very odd.

P/S - have you done anything different lately??

No. I have done nothing. Havenā€™t worked out that much. Havenā€™t taken any supplements. Havenā€™t really been treating the liver. The only change is maybe eating a little bit more due to the holidays. I didnā€™t masturbate for about two and a half weeks and then did it Friday. That kick started this whole thing I guess. Iā€™m just enjoying the ride ride now.

I think my most recent huge crash is indicative of a lot of long term sufferers first crashes. I crashed very hard about a month ago and then had a period of strong recovery a few weeks later. I noticed things that I havenā€™t seen since this whole thing started; like bigger genitals, increased body hair growth, nocturnals etc. Now these feelings have ebbed away and Iā€™m in a real bad place. I have lost ten pounds and my muscle wastage has got real bad. Very strange to see all this happen at almost two years off. I thought things would gradually get better. Depression has been a big problem lately. This had been gone since about six months off.

Having a really good 24 hour period. Depression has lifted, body is filling out and feel muscular again, genitals have increased in sized and sensitivity, sleep improved. This is very strange. The ups and downs with this disease are very crazy. The only thing that I can do is try to analyze what I am doing when a rapid downturn occurs. I noticed a very strange event on Thursday which sent me into this latest trouble spot. I ate some extremely spicy food and washed it down with few beers. a few hours later I felt my prostate spasming. I didnā€™t think anything of it, but found it to be a little weird. Then, the next morning I must have urinated 10 times or more between when I woke up and noon. I couldnā€™t stop. So this event triggered my continued spiral downward until yesterday. I remember reading that prostatitis is triggered by caffeine, alcohol, and spicy foods. Could it be that my prostate just reacted and caused all this? Maybe when the prostate is upset, it stops its ability to accept or maintain DHT thus creating a bad hormonal cascade in our bodies. I donā€™t know. I just found it to be strange.

Glad youā€™re feeling better proscarred.

One thing I have noticed within the last few weeks/month is that Iā€™m having a marked increase in androgenic body hair. My body hair is growing faster, I notice an increase in hair on my hands and knuckles, and increase in back hair, pubic hair is growing faster and fuller, arm pit hair also. My latest blood test does not show an increase in adiol g activity, if fact its lower than before. I donā€™t understand this disease. Its like my highs are higher than they have been before, yet Iā€™m getting these downward spikes which are awful. Iā€™m not taking anything beside vit D so I canā€™t attribute these upswings to anything. I just keep riding the roller coaster.

The crash i experienced after my best recovery period this summer was probably even worse than the initial crash when all of this began. I went from 100% recovery to -100% just like that. Itā€™s very scary how our bodies can just change like they are doing so. Even if we were to think we are recovered, who is to say that years down the line we wonā€™t just crash again :frowning:

I have just completed my first entirely ā€˜goodā€™ week. I even had a period Sunday to Monday where I was near 100 percent. I was even able to drink alcohol without losing a beat. I was feeling good until Thursday of last week and then did a hard cardio workout. Probably my hardest since my crash. I didnā€™t last that long with stamina and pretty much had to stop after 20 minutes. I have been on a high ever since. Although my body is still feeling sore. Iā€™ve worked out everday since then and havenā€™t given it a break. I have been feeling periods of libido and everything. Genitals are markedly larger. My body feels completely different. Iā€™ve lost a lot of fat in the last three weeks. My clothes are fitting different etc. Lost about 5-10 pounds. Unfortunately, with all the working out, Iā€™ve struggled to put on muscle. I feel a lot weeker and skinnier than before. Who knows. Hopefully my recent crash is acting like a reset. God I hope this isnā€™t temporary. It is a milestone to have one week of feeling normal though. I expect more setbacks, but hopefully the good periods will start turning into months instead of weeks etc.

Ride this streak all the way home. See you in the recovery section, proscarred!

(I usually donā€™t cheerlead on forums. But if thereā€™s ever a forum to cheerlead on, this oneā€™s definitely it.)

My recovery period took a setback on Christmas Eve. I drank a decent amount on Christmas eve and Christmas day. woke up with numbness in the prostate. Genitals shrunk a bit, felt weak and some light depression. A bit of ED also. However, this morning feeling a bit better also depression is still evident. I think Iā€™m trending back toward the recovery phase. I think a few intense workouts will get me back going.

@PROSCARRED

Happy Holidays. In my own experience with this, I find drinking alcohol now makes me very, very sick feeling. I remember on Thanksgiving, I figured I had not drank in a while so I would have just a little bit. One glass of wine and instantly I had brain fog so thick you could cut it with a knife and I just felt plain awful. I know it sucks and it is no fun to be the only one who cannot enjoy a drink, but it seems to set you back, and from reading your story, you have come way too far and fought way too hard to knock yourself down in a recovery phase for some drinks. Hang in there man, and try and eliminate alcohol. Good luck and feel better.

I have been feeling the best Iā€™ve ever felt the past two days. I had been in an incredible upswing for about two weeks prior to christmas and then went backward after drinking during the holiday. After almost a week of feeling very lethargic and having a strange groggy feeling in my brain (not brainfog but just a feeling of numbness almost like being on a strong pain pill etc.) I started to feel a bit of an upswing again Friday before new years. In fact, I had a great work out at the gym. Felt strong and good overall. I havenā€™t taken any supplements in about six months. I randomly stopped at a health food store on the way back from the gym and picked up a really good food based mens vitamin (no saw palmetto included) and some fish oil and took one of each as a start to my new years resolution of being more healthy. So then the next night on new years eve I drank a lot, but stuck to vodka/soda water rather than my usual beer. I woke up the next morning feeling pretty hung over and a tiny bit numb in the prostate. I then took a mid morning nap till about noon. When I woke up I felt the best Iā€™ve felt in 2 years. It has continued since. I have a strong libido (never even had a libido before), testicals are pretty much full size, penis is almost full size, erections are strong, have a body odor today, Iā€™m oily, body hair is markedly thickening in all areas, my body looks incredible, body fat is almost nill, I looked completely ripped at the gym. This is unbelievable. I hope this is not a temporary honeymoon from a multi vitamin and a few capsules of fish oil. Maybe all my hard work at the gym is finally paying off, who knows. The highs are now taking me to full recovery.

yeah manā€¦ i read through your last postsā€¦ you are having some interesting ups and downs. i noticed during one you said that you didnā€™t masturbate for 2 weeks, then masturabted, then you were back. you didnā€™t mention masturbation in other posts after thisā€¦ but did you see this as a factor contributing towards your spontaneous periods of getting better? iā€™m sure your consistent workouts are helping a ton as well.