My fin story

No, I have not used a QXCI. I have read about it though and it seems to be blatant quackery:
quackwatch.org/01QuackeryRel … rroid.html

The QXCI is on the FDA list of “Fraudulent and Deceptive Medical Devices” that are actually banned from importation:
accessdata.fda.gov/cms_ia/im … t_231.html

I totally understand the feeling of hopelessness and desperation that comes from dealing with doctors that are insensitive assholes as well as clueless to your problems :frowning: . Still, I think that you should use your limited funds and time to look for a medical doctor that is willing to listen to you and try different tests and treatments. Your “aura” or “bio-energetic forces” is not the problem, rather you have a very tangible medical condition that needs professional help. Finding that medical professional that is able to help you may not be easy, but please try at least a few different uros/endos before giving up! I don’t think the QXCI treatment is going to hurt you if you really want to try it, but please don’t put all your eggs in that basket!

Give up the doctors unless it’s chrisler or someone who already knows about our problems. We have the resource to self test and diagnose better than they do. We can also self treat based on lots of experience, either that from people who are doing steroids, thyroid treatment, etc. These people have a vested interest in the process and health, the doctor’s don’t.

Honestly, how much wasted energy and resources has been spent on doctors? More than it’s worth I think…

Yes, I see your point. It’s just that cantsleeps problems seem so urgent, with a prostate swollen to a size where he can hardly pee anymore. I was terrified to read that he gave up on all doctors, putting his life in the hands of some random guy with a machine that has the most ridiculous name and proposed mechanism of working I have ever heard of, claiming to cure all possible diseases of mankind, including cancer and AIDS.

I don’t know if this Bill Stanton is an honest guy who actually believes in what he does. He might very well be. I’m fairly certain though that the inventor of this magical machine that sells for about $20,000 each is an unscrupolous fraudster making a fortune swindling desperate people that are seriously ill.

seattletimes.nwsource.com/html/l … e18m2.html

Well I’m back from the QXCI “treatment.” Like I said yesterday, I’d come and take my medicine if this thing was bunk. It’s really hard to form an opinion 100% either way, but I don’t feel it’s anything legitimate or worth anyone’s time.

The “practitioner,” who is a bit of a weird man, about 62 years old, strapped a few velcro bands to my head, arms, and legs, and set his computer to do its work. The whole session basically was a back and forth of me telling him about my life and him reading various “findings” from the computer as they emerged. I realize that many of these things may have been “found” after I told him something revealing about my condition or life. In fact I believe this to be the case in many instances. The guy actually knew what propecia was beforehand and was able to explain to me the mechanism(inhibiting 5AR2, and the function thereof), which was something I found impressive considering he has a rich, full head of hair. He was of the opinion that the drug may not be completely gone from my system, which I think most of us here would say is a ridiculous notion, and recommended a detoxing protocol, which I’ll probably do anyway just for my general health.

Here are some interesting things QXCI “found”:

  • I have a problem in my bottom 2nd molar on the left side of my mouth. This is actually true, and I have a huge filling back there that took several tries to get right. Dentists have repeatedly told me this tooth will eventually need a root canal. This was probably the most impressive moment of the entire session. It’s perhaps possible that he saw the filling at one point and put something into the computer, but it is very difficult to see the filling unless my mouth is wide open.

  • Deficiencies - zinc, DHA, GABA, Vit D

  • The computer showed a “testosterone deficiency” of “101%”(lol - said it right there on the screen). He said he could not find an estrogen problem.

  • He said it didn’t find anything strange with my prostate, but he did a “prostate treatment” electromagnetically. I have noticed no difference in the behavior of my prostate.

  • The computer said I was at risk for breast cancer and had muscle wastage.

  • The machine showed emotions I had an abundance of and the ones I was most deficient of. The most prevalent emotion was “apathy,” which I would say is 100% true. The least abundant one was “joy,” which I would also say is correct.

  • The machine said I had “inflammation,” “infection,” mycoplasma infection, “low function” white blood cells, blood flukes, platelet aggregation, high blood fibrin, high environmental toxicity(the most from cosmetics(?), insecticides, and food additives), prior vaccine reactions, and chronic hypoadrenia. I find much of this difficult to believe, but of course cannot disprove it.

All in all, I think it’s probably garbage. Since my condition is getting so dire, I still harbor a small bit of hope, and will probably do some detox with a magnetic clay bath he recommended, as well as a few of the supplements, such as zinc and GABA. I’ll also do the parasite cleanse just for the hell of it, as that’s probably good for general health too.

So do I feel angry, ripped off, and ashamed? No. It was $195 for a 3.5 hour session, and I felt much better after I left, specifically because of the talk therapy component… I basically told the guy my life story and it was good to get that load off to someone, anyone, even if he may be a scam artist. In fact I have to admit, it was at least as good as any therapy session I’ve had with a “legit” psychologist or social worker. He was also very knowledgeable about supplementation and made some interesting suggestions, such as zinc monomethionate, DHA, GABA, anti-inflammatory supps for my prostate problem, and an interesting mood enhancer I’ve never heard of called Stabilium, made from a particular kind of fish extract. He also instructed me on some detox methods that may be helpful regardless of my propecia problem.

Will I see him again if he suggests another “treatment”? Probably not. Do I recommend trying this machine? No. I am not 100% sure it is a fraud, but I am highly doubtful. I never expected an immediate full recovery, but I was hoping perhaps this machine could find some root for the problem where conventional medicine could not. I am disappointed.

Referencing another discussion, does this make sites like “Quackwatch” legit? No. I 100% believe that site is a farce and likely some kind of shill for some big medicine concern. If you endlessly attack every alternative treatment out there, you’re bound to get it right some of the time. There are most certainly frauds in alternative medicine, but there is also legitimate help to be found. This is not something I would have done had I not been desperate, but, again, I am not sorry I tried.

All in all, I found the experience to be very interesting, and at the very least was highly entertained for three and a half hours. I will still likely not be seeing the urologist again. The appointment with Shippen will be canceled tomorrow morning, as I do not have the resources to spend $1000+ a month seeking treatment from someone with no track record of success after almost 10 years of treating this condition.

1 Like

edit

Good post cantsleep. You sound very sensible. I hope you find some help for those horrible prostate issues.

It sucks that the very drug that doctors often prescribe for treatment of enlarged prostates is the same that gave you the problems to start with :frowning: . I guess saw palmetto would be a “milder” alternative, but still it may come with problems similar to those of fin. The terrible irony.

When I got my urine test back from the ND I saw, my GH was low and the lab had a recommendation at the bottom that I needed to supplement with L-glutamine or L-arginine to boost GH levels.

DO NOT TOUCH SAW PALMETTO EVEN WITH A 100 FOOT POLE.

Well I said I wasn’t going to come back, but I felt like I needed to write things out, so here is an update. I guess it’s been 3.5 months since I last posted, and over 6.5 months since I quit fin.

I was pretty distraught when I quit posting and was actually planning on killing myself-- I came quite close to doing so, but refrained because I didn’t want to hurt my family. This remains an option should my health take a worse turn… I fear the long-term implications of all this.

The recoveries section is the most depressing part of this site. Months have passed, and there is nothing new. This is a very unhealthy place to hang out.

Hell of a deal. A two-week mistake I made 6.5 months ago is probably going to plague me for the rest of my lfie.

Anyway, I’ve pretty much given up trying to treat my problems. The only supplement I still take, beside a multivitamin, is Vitamin D3 10000 IU per day, just for the hell of it.

The problems since I crashed that haven’t improved:

  • Deformed, stretched-out pencil dick. I try my best not to look at it.
  • Prostate-related problems(takes upwards of a minute to get a urine stream started, weak stream, random perineal pain, can’t empty bladder completely, frequent urination, random pains in urethra and in pelvic muscles) This is BY FAR the worst problem for me and is becoming very difficult to live with.
  • General feeling of being unhealthy and “off.” I feel strange and cold most of the time.
  • Yellow semen
  • Difficulty ejaculating-- it doesn’t all just shoot out like it used to. I usually have to manually squeeze it out.

New problems since I last posted here:

  • Strange dental problems - Not sure if this is propecia related, but it started a month after I stopped taking it. I’ve already had to have a root canal done on one tooth, and it still hurts over 6 weeks after. Another tooth has started to become painful and sensitive to air too. My dentist is stumped, as neither of these teeth show any problems either visually or on X-rays. He suspects they are both cracked, probably from night-time grinding. I’m not convinced this doesn’t have something to do with fin. My dental health was fine before this started.
  • Body has changed shape slightly. I’ve developed some fat in the pelvic region and in the butt which I’ve never had before. Nothing too bad, considering everything else.

Problems which have improved:

  • Sex drive. This has been a minimal improvement, however I’ve found myself downloading porn again. When things were at their worst, I had little to no interest in even doing that. I still have almost no motivation to actually get it out and wank, and only do so as a formality for the health of my penis.

Resolved:

  • Sleep, ironically. Back to normal for the most part. I no longer wake up every 30 minutes having to go to the bathroom. I’ve returned to my normal pattern of waking up once, halfway through the night.
  • Needle-like sensations on the bottom of my feet. Had this for several weeks, but it just kind of went away.
  • Gyno-like symptoms. Not sure if I ever really had gyno. Probably just the beginnings of it. For about 10 days shortly after I crashed my chest was burning and painful and I feared the worst, but it went away and hasn’t come back since. My chest looks slightly less muscular, but has not grown significantly.

So right now, I’m basically dealing with the prostatitis and the strange dental problems. Very distressed about the dental issues in particular. The thing about this Fin shit is that you never know if the newest health problem you have is related to it or not. I just hope I don’t end up with some more serious health problems in the future.

Was in the emergency room last night.

My prostatitis is getting out of control. It had settled into a pretty consistent level about 5 months ago, and had been the same that whole time. It was very bothersome and interfered in my life quite a bit, but I had gotten used to it in a way and had accepted it. I stopped seeing a urologist several months ago after taking antibiotics because they didn’t help.

About 3 days ago I suddenly started having even more extreme frequency of urination, difficulty urinating, and pain in the perineal and urological regions. It has gotten progressively worse the last two days, to the point where I can barely pee at all. The whole fucking area is blocked off-- even the rectum… I can barely even let out gas… It takes me about 2-3 minutes to get a stream going, and it’s so weak, and I am tearing up my muscles down there forcing the urine out. Plus I have to go every 30-60 minutes.

I had been doing prostate massages up to a month ago, but had stopped because they were ineffective. I went back there and felt the prostate last night and the thing is huge compared to before. I am afraid very soon, within the next few days, I won’t be able to pee at all.

In the emergency room they gave me levaquin for 10 days, and despite the warnings about quinolones, I don’t know what else to do but take it. Took a double dose in the emergency room. They sent me home and told me to come back if I can’t pee at all and they’d install a catheter. The urine tests were totally clean, so it’s not a UTI.

On Monday I’m going to have to find another urologist to manage this condition. If they can’t manage it, I may be looking at surgery. Already doing research about Greenlight Laser Prostate surgery. It’s expensive and the potential complications are incontinence, impotence, and other things, plus the surgery only works for about 5-10 years because the fucking prostate just grows back… so you have to get it done every few years…

Of course all urologists can do otherwise is prescribe antibiotics or Proscar. If antibiotics don’t work, I may have to go under the knife. Since I don’t have a job I’m hoping the urologist I see can help me get on social security and medicaid at least. I wish I could just end it all, but I’m not in a good position to do it right now.

I keep praying to God to stop torturing me and just let it stay the way it is, but things just keep getting worse. I don’t know what I did to deserve this after 15 doses of this stuff. 7 months ago I was such a healthy person and just had a little bit of hair loss. I am sobbing all the time thinking about what is going to happen to me. If you’re reading this and are deciding on whether or not to take this drug, STAY THE HELL AWAY. STAY THE HELL AWAY DON’T TAKE EVEN ONE PILL

2 Likes

I am doing on going broccoli treatment…5 days on 2 days off, this has helped my pissing. I would give this a shot for a month or 2, if you havent already.

I don’t know what is happening to me. It seemed like my symptoms had leveled off a few months ago-- besides the dental problem, which may or may not be fin-related, they had pretty much stayed the same since the start of September. Now I’m getting a whole new level of prostatitis, nut and perineum pain, and pain that runs down my thighs, and the needle sensations in my feet have returned. I guess maybe something ticked off my prostate, or maybe it has simply decided to grow once again after so many months of dormancy.

My nuts are hurting like crazy today. I haven’t had this kind of nut pain since I was actually taking fin 6.5 months ago.

Try not to dwell on the “what if I never took this shit” thoughts. Its only torturing yourself for something that isnt your fault.

Hopefully things will improve for you as time goes by. If ever you can would be great if you got to one of hte PFS docs. I know its tough financially and when your sick from PFS.

btw - did you tell the attending this was due to Fin? If so, what did he or she say?

Well that’s the thing… almost 7 months have gone by… I had actually gotten used to the urinary issues and was dealing with them, but things suddenly got way way worse out of nowhere a few days ago. The problem is I have no idea if this is prostatitis or maybe BPH from my hormones being out of whack and it will just keep growing. I am just praying it doesn’t close my urethra up entirely. What makes it doubly as bad is the way it’s blocking up my rectum too. This sucks!!!

I was just informed that the culture on my urine came back completely clean, but they said to keep taking the antibiotics because that should do the job. Sure they will.

I don’t live near any of the PFS doctors, and even if I did, I don’t have the money to undergo treatment. I imagine it’s quite expensive to see these doctors, buy the drugs, and constantly go through all the blood testing. On top of that, the results just haven’t been there for those who have seen them(though I’m aware you are currently seeing one). I’m not sure if they could fix the prostate problem even if they could get other things back in order. Once the prostate gets inflamed, it seems like you’re usually out of luck.

I told the ER physician it was due to fin, and he didn’t really acknowledge it or say anything. His belief is that I had a “sub-acute” infection and that taking Levaquin would “knock it right out.” Of course after taking the 500mg dose they gave me in the ER, the only thing that got knocked out were my tendons and joints.

I have ordered serrapeptase and wobenzym N and will be following the systemic enzyme protocol on this page:

randypeterman.com/set4cpps/?page_id=11

I don’t give a crap about my sex drive, penis size, etc anymore. If I can just get myself back to the point where I can pee reasonably well again I will consider myself lucky and move on.

I am quickly reaching the end of my tolerance. I thought things had settled down, but the last three weeks, my health has taken a nosedive.

I have another tooth that is failing me. I had such a beautiful, healthy mouth of teeth before this drug. In the last 5 months, I’ve cracked 3 teeth. All of them will probably have to be pulled. My dental problems all began approximately one month after cessation of fin. And I’m sure this is only the beginning.

My prostate is inflamed beyond belief now. It keeps getting worse. It takes so much pushing and struggling for 1-2 minutes to get any urine out and I almost always feel like I have to pee. It was barely tolerable before, but now it is twice as hard to pass urine. And I have to go ALL THE TIME. If I drink something, it goes right through me, and if I haven’t had anything to drink, I still have to pee every 20-40 minutes. As a result, my sleep has started to deteriorate again after having returned to normal for a few months.

My bladder muscles and urethra and perineum ache. I’m also incredibly constipated and can barely even let out a fart-- I think the inflamed prostate is blocking things up rectally as well. Everything is so blocked up and congested. No drugs, supplements, massages, or anything else I’ve tried has even put a dent in this. I don’t know what the hell is happening to me.

I wonder if there are Merck execs and lawyers that read these forums and snicker at all the stories of these poor fools who put their faith in them all for the sake of hair. So many lives are ruined, but they continue to get even more fabulously wealthy and that is all that matters to them.

1 Like

Do you take vitamin d?

Yes, I’ve been taking 10-15k IU every day for probably the past 4-5 months.

Another person suggested that I take large doses of vitamin C for a few weeks to help my teeth. I did that, and there has been no difference.

I wonder if Beta Glucan toothpaste or CoQ10 toothpaste could help your teeth and gums…

youngagain.com/magento/creams-and-lotions/toothpaste-4.html

youngagain.com/magento/creams-and-lotions/toothpaste-2.html

I would still supplement with a toothpaste intermittently that contains fluoride to prevent cavities since neither of these have it in them.

That’s crappy man. Hopefully it will stop.

Thank you for the links.

I’ve tried so many different toothpastes and remedies since this all began… nothing has helped. It doesn’t seem to matter what I do.