what are the point were you recovered? u recovered or are just throwing theories here? i’m also a proponent of gut health as a major player here, but u just vommited some information here and did not updated your recovery or sides that u recovered from.
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It doesn’t look like he comes around here anymore unfortunately. I’m also zeroing in on the gut but it’s been hard finding out what to do
Hey man, are you still around? Would love some additional direction, really struggling here
hey man, how are you these days? Did you ever figure out a way to heal with the gut theory?
I know mine heavily affected my guts, in fact that was one of the first things that went wrong with mental symptoms I didn’t attribute to it at first and then it was all downhill from there. Focusing on my guts did help but I did so much that I couldn’t tell you what exactly did what. I essentially just rode the immune chain reactions with a focus on what was going on in my guts and gradually got places. I think in my case the immune system and microbiome got into an inflammatory loop it couldn’t get out of and as a result other previously dormant infections bacterial or viral were allowed to get out of control and sealed the deal.
I finally completely recovered after the low dose nicotine test that I wasn’t doing for this condition specifically. I felt better on the 3.5 mg patch, felt really sick over the next couple hours into the whole rest of the day, and then the next day and forward I had fully functioning everything and had my drive to do things back too so I had finally completely crawled out of the anhedonia. I felt those gears that had stopped in my head start going again. When I found myself subconsciously wanting to do hobby stuff, wanting to collect music again, got the impulsive sexual drive back, and wanting to make something of myself again then I knew me was back. Not without scars and a lower ME/CFS threshold of energy problems but back. I can also feel coffee and weed again (have not tried alcohol but I don’t drink so I’ll never know).
With me there’s a continued theme same with the vitamin D experiments I did with small doses to modulate the immune system that modulating immune loops was crucial for me to getting out of this whatever was going on. This micro modulation really only came into play though months after getting initial imrovementsin my baseline from certain things like K2, activated charcoal, methyl-b12 (I lost this one when I got severe but managed to get it back after raising my tolerance to coffee, your guess is as good as mine what happened there), and propolis. So if you’re severe in your symptoms before you get to the point where heavy focus on micromanaging the gut and immune loops matters you need to get to a better baseline and so far no one has consistently found a way to get there that works for everyone. You could repeat everything I did and get horrifically worse. In fact if I did everything I did in a different order like for example if I increased the b12 again before I raised my tolerance for it I would have crashed again.
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how much propolis were u taking? and hhow long after u started the nicotine patches, and was it directly 3.5mg or do you started with higher amounts?
Did you ever recover? I also tried sodium butyrate as recommended by @MOONCHILD. It helped with some things but the effects wore off and overall did not cure me unfortunately