what are the point were you recovered? u recovered or are just throwing theories here? i’m also a proponent of gut health as a major player here, but u just vommited some information here and did not updated your recovery or sides that u recovered from.
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It doesn’t look like he comes around here anymore unfortunately. I’m also zeroing in on the gut but it’s been hard finding out what to do
Hey man, are you still around? Would love some additional direction, really struggling here
hey man, how are you these days? Did you ever figure out a way to heal with the gut theory?
I know mine heavily affected my guts, in fact that was one of the first things that went wrong with mental symptoms I didn’t attribute to it at first and then it was all downhill from there. Focusing on my guts did help but I did so much that I couldn’t tell you what exactly did what. I essentially just rode the immune chain reactions with a focus on what was going on in my guts and gradually got places. I think in my case the immune system and microbiome got into an inflammatory loop it couldn’t get out of and as a result other previously dormant infections bacterial or viral were allowed to get out of control and sealed the deal.
I finally completely recovered after the low dose nicotine test that I wasn’t doing for this condition specifically. I felt better on the 3.5 mg patch, felt really sick over the next couple hours into the whole rest of the day, and then the next day and forward I had fully functioning everything and had my drive to do things back too so I had finally completely crawled out of the anhedonia. I felt those gears that had stopped in my head start going again. When I found myself subconsciously wanting to do hobby stuff, wanting to collect music again, got the impulsive sexual drive back, and wanting to make something of myself again then I knew me was back. Not without scars and a lower ME/CFS threshold of energy problems but back. I can also feel coffee and weed again (have not tried alcohol but I don’t drink so I’ll never know).
With me there’s a continued theme same with the vitamin D experiments I did with small doses to modulate the immune system that modulating immune loops was crucial for me to getting out of this whatever was going on. This micro modulation really only came into play though months after getting initial imrovementsin my baseline from certain things like K2, activated charcoal, methyl-b12 (I lost this one when I got severe but managed to get it back after raising my tolerance to coffee, your guess is as good as mine what happened there), and propolis. So if you’re severe in your symptoms before you get to the point where heavy focus on micromanaging the gut and immune loops matters you need to get to a better baseline and so far no one has consistently found a way to get there that works for everyone. You could repeat everything I did and get horrifically worse. In fact if I did everything I did in a different order like for example if I increased the b12 again before I raised my tolerance for it I would have crashed again.
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how much propolis were u taking? and hhow long after u started the nicotine patches, and was it directly 3.5mg or do you started with higher amounts?
Did you ever recover? I also tried sodium butyrate as recommended by @MOONCHILD. It helped with some things but the effects wore off and overall did not cure me unfortunately
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Hey are you still around? I’m still trying to heal by targeting the gut but have stagnated for quite some time now.
Hi I’m right here I know I don’t check in here often anymore. My guts are currently wrecked as I appear to have covid from work, it also messed up my sexual functioning quite a bit but no numbness or anything. I’m just less responsive which I suppose is some sort of viral neuro-vascular dysfunction thing since I also mentally feel like shit right now. Not crashed though but I hope I bounce back soon as I’m past the absolute worst of it at day 7 here.
I think the gut modulation of the condition largely comes from gut immune loops as I also somewhat recently almost got trainwrecked by psyllium husk of all thing that had a texture suspiciously like lions mane but bounced back. I can’t see otherwise how the stuff would have threatened a crash like that but it also proves I’m still crash prone but just far less prone as other normal things can’t seem to do it anymore.
edit 12/23 - Everything is definitely still here but just like I said not as responsive, so with regressions I’ve definitely confirmed the neural association networks that trigger and make up your sexuality are still there. They were the same before, they’re the same now. But with thought I can just barely get a response down there now when before I got sick and was much closer to normal just thinking would drive me nuts in less than a minute. I still can’t smell anything so it’s still moving through my system and I don’t know when I’ll recover from the virus completely but it’s going to be interesting to see if I still have more recovery to do again on the PFS front or it completely just bounces back after I clear this.
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Edit just bumping, I’ve bounced back sexually but still have some viral like symptoms a bit of a cough now and then, weird feeling throat. If I orgasm it gets a bit worse classic POIS style with a little extra “viral flare” but thankfully isn’t too bad. Post orgasm since I was extremely frisky today it a bit harder to get it going but that’s expected anyhow and I don’t expect my libido to be ultra high even hours after anyhow. Ate a bunch of trash food this weekend with the family and tonight won’t be different but the food I been eating hasn’t really been touching anything in the sexual department whatever I consume and hasn’t in quite a while now. Though if I eat a lot of fish I notice I’m a bit more frisky in the days after. IT’s not much a concern for me anymore though, haven’t touched anything indian though yet cause I’m still terrified of the anti-orgasmic power of curry last time I tried it when I was much worse. If the time I almost crashed on a tiny amount of psyllium husk says anything it means there is still things out there I’m crash prone to even though they’re obviously few in number now.
In one of your last posts you talk about getting a better baseline before doing the gut immune loops. Do you have any advice on how to get to that better baseline?
And can you clarify what you mean by modulating the immune loops in the gut? How is this done?
What I mean is analyzing how your system responds to what you put in there if your like me and are very sensitive to foods in general have immune modulating effects that also translate neurologically. For fine example today as I may be on the brink of a migraine from something environmental that is always compounded by what I’m eating at the time gluten is never good news and will always lead to downwards mood swings and an increase in sneezing, feeling hot flashy, and getting increased nasal drip in this state. Repeatable and happens every time but I didn’t know the weather was just suddenly going attempt to destroy me this holiday season so the perfect gut involved immune neurological storm may be on.
You will obviously have different microbiome than me and your responses to things if you have a lot of food sensitivities may be vastly different. If you don’t really have many at all then controlling what is going on with PFS through the gut is going to be more difficult cause there is less of a window into doing so. We still have no idea what exactly goes wrong in cascade with this condition and why everyone will have the same bubble of symptoms but different presentation in time they appear and severeity. Everything that worked for me could very well not work or be severely counter productive for you. I may have as a consequence of having so many gut sensitivities actually had more wiggle room with this condition through repeatable neurological shifts from what I throw down there. How it’s done is going to be very individual on that front besides maybe based on what has not done people at large here good is likely to not do you well either. Like this whole time due to for example how volatile ginger and things in that family tend to be I stayed away from and still do, I also won’t touch anything with saffron in it either.
Hey, how’re you doing these days? Still using that probiotic?