As most know my symptoms started 20 years ago, those in this title hit in the last 3 to 4. I continue to lose tissue on an a going basis. As this disease has been around for over 2 decades there must be some info on those that continued to deteriorate with the above symptoms. What happened to them. I haven’t seen any stories of amaciated bed bound skeleton like guys. Has it / does it plateau at some point. Additionally any scientific views would be good. I and others in this situation are in what feels like uncharted territory but surely there’s been some that passed this point that didn’t succumb to suicide and held on!!!
It does plateau for the most part if you take care of your body. I was stupid and did some drugs, smoked some weed etc and i lost a lot of muscle because of it. Take care of your body. No sugar, no drugs, alcohol and smoking and i think you will be fine.
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Hey, buddy, you all right? Has the atrophy stopped? It’s happening to me now. It’s terrible
No mate unfortunately not it is really troubling ice had pfs for over 20 years and I’m still here despite the traffic going in only 1 direction. Some have improved hang on in there
I want to know if this atrophy can be stopped, I am so afraid that atrophy will paralyse me or kill me, my limbs are getting weaker and weaker, I read the posts about atrophy long ago, but they have no news at last, I am so scared
There are no cases I’ve heard of where it causes paralysis or death.