@Recovery18 and I decided to create a YouTube channel to provide sufferers with a platform to speak about PFS. We hope some of you will consider stepping forward to share.
We also want to create a platform for interviewing scientists and researchers at the cutting edge of biotech. There are some researchers I have been in contact with who we can interview for the channel. This will hopefully help instil some faith in science in our community and also help legitimise our condition so we appear as a rational and normal community.
Finally, we plan on interviewing people from other rare disease communities to shed light on how they fundraised and worked towards therapeutic development.
If you’d be kind enough to like, share, comment, subscribe etc it would be much appreciated. We have some truly great content in the works!
Without further ado here is our channel intro https://www.youtube.com/watch?v=Z5SBlfKA9ns